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Susannah Fox

I help people navigate health and technology.

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  • Patient-led Innovation
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    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Fact sheet: teens and young adults, social media, online health resources
    • How Young People Use Digital Media to Manage Their Health
    • Pew Research: Americans’ Data Worries
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  • Susannah Fox (606)

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Recent Posts:

  • A survey about clinical trial support groups
  • Caregiver starter pack
  • The Promise of Patient-Led Research Integration
  • Public Q&A: Human-centered design
  • Impact review
  • The Next Big Thing in Health
  • Engage with Grace
  • Patient-led innovation
  • Champions fast-track innovations
  • Solvers attack problems
  • Networkers pool resources
  • Seekers go out on the hunt
  • Too legit to quit
  • Caregiving is not a “career break”
  • Designing Peer-to-peer Health
  • Case study: Injection tips
  • What can we do by Tuesday?
  • Case study: Trevor’s disease
  • Lisa Suennen adds a dash of salt
  • Whose needs are not met?
  • Should peer health community moderators get paid?
  • Celebrating #BCSM as a peer health innovation
  • Consumer-strength tools, industrial-strength innovation
  • Peer health playbooks
  • Doing the work
  • Inventing the future
  • Data-driven support for vulnerable populations
  • A futurist’s perspective on LongCovid
  • LGBTQ+ youth are reaching out for help
  • Depression, social media use, and digital health
  • Coping with COVID-19
  • From stunt to solution
  • Standing ovation… then crickets
  • The Data Puzzle of Our Time
  • “I’ve been there, let’s change things” innovation
  • LongCovid’s citizen scientists
  • Crazy, crazy, LongCovid, obvious
  • HealthChangers: Mark Ganz
  • Case study: Breast cancer
  • What if we had people’s trust?
  • Acceptable uses of health data
  • Credible, useful, helpful, trustworthy
  • How connection can lead to change
  • Lessons learned about hospice care
  • Elegy for A. and M.
  • Peer-to-peer advice for caregivers
  • Patient-led research is a key element of pandemic response
  • Zooming into each other’s homes
  • Advancing clinical registries to support pandemic treatment and response
  • How peer-to-peer health advice can help people take their meds on time (and so much more)
  • Accelerating real-time electronic data capture for COVID-19 tracking and response
  • Connecting during COVID-19
  • Signs of the times: Black Lives Matter
  • “For Black people, Minneapolis is a metaphor for our world.”
  • Leveraging data-driven patient participation to accelerate medical research
  • Tracking the trackers
  • Building an intake valve for new ideas
  • Pandemic problem-solving
  • Surviving a pandemic like an artist
  • Why entrepreneurs should listen to patients & caregivers
  • Public Q&A: COVID19 precautions and care
  • Bits of beauty
  • Public Q&A: Peer advice during a pandemic
  • Public Q&A: Patient registries
  • Project management for caregivers
  • Public Q&A: Peer support for parents of teens with cancer
  • What if your clinician gave you a prescription to check out a patient group that they knew to be good?
  • Chasing cures
  • Crowd-diagnosing STDs on Reddit
  • How might we push power out to the edges of the network?
  • Why I (finally) signed up for health data access
  • How to make 10 million discoveries
  • Mystery solved. Again.
  • Public Q&A: conference organizing
  • What I’m reading and admiring…
  • What’s your advice?
  • Cheese, whisky, and health data
  • Sunflowers turn to each other for help
  • Why should anyone care about health data interoperability?
  • Chasing cures
  • A helping hand, just in time
  • Assessing the quality of peer health advice
  • Public Q&A: Acronyms, protocol, and other lessons learned from switching fields
  • Celebrating invention and innovation
  • A Matter of Trust, Perception, Risk, and Uncertainty
  • Mapping the health data landscape
  • We need a digital health Cajun Navy
  • Update: A Seat at the Table
  • “Human stories really are what drive us…”
  • Better health, together
  • Trust gap: Health apps and data sharing
  • Half of 18- to 22-year-olds seek peer health advice online
  • Paging fans of Dr. Google
  • Art and data
  • Health Datapalooza X
  • Public Q&A: How to connect teens with health peers
  • Rare but not alone
  • Building the evidence base for peer health advice
  • Rare Disease Day 2019
  • Celebrating innovation as a problem-solving tool in government

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Recent Comments

  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
  • Diane on A survey about clinical trial support groups: “I’d love to hear about clinical trials of the new weight-loss drugs believed to help people with diabetes and pre-diabetes” Mar 8, 12:15
  • Dave deBronkart on Lessons learned about hospice care: “I want to add some things I’ve learned in the years since you posted this. First, it should be noted…” Feb 20, 16:44

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popular posts

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