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  • Digital Health Practices Among Teens and Young Adults: Key Findings
  • Fact sheet: differences between young women and young men in their use of social media, online health resources
  • Fact sheet: teens and young adults, social media, online health resources
  • How Young People Use Digital Media to Manage Their Health
  • Pew Research: Americans’ Data Worries
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Recent Posts:

• Wow! How? Food Equality
• Find a bit of beauty in the world today
• Case study: Recurrent fever
• Wow! How? In-your-face Expertise
• Wow! How? Patient Memoirs
• Wow! How? Peer Support for Queer Youth
• Wow! How? Patient-led Biodesign
• Wow! How? Obesity Treatment
• Wow! How? Learning Health Networks
• Wow! How? For Love & Life
• Public Q&A: My 5 favorite books on how to defend yourself against the U.S. health care system
• Wow! How? Mystery vs. Moms
• Discovery Diaries with Damon Davis
• Covid and the Future of Health
• Wow! How? Peer Warmline
• Q&A with Deborah Kalb
• Wow! How? Hope for Henry
• The Other 80
• Wow! How? PEARS
• Rebel Health Audiobook
• Wow! How? Community as therapy
• Rebel Health in the News
• Public Q&A: “I received scary test results. What questions should I ask my clinician?”
• Wow! How? Dr. Reddit
• Wow! How? Eating disorder recovery
• Wow! How? Hospital Alarms
• Rebel Health
• Wow! How? Patient Data Rights
• Wow! How? Community Consults
• Wow! How? Moebius Syndrome
• Public Q&A: Rare Disease and Rebel Health
• Wow! How? Patient-Led Research
• Wow! How? Peer Support
• Books I read while writing Rebel Health
• Wow! How? Gleevec
• Wow! How? Ring Theory
• Wow! How? End of life
• Engage with Grace
• Wow! How? False Boundaries
• Wow! How? Public Access to Research
• Wow! How? Drug Interactions
• Wow! How? Diagnosis
• Wow! How? Home inventors
• Transforming research participation
• Wow! How? Health
• Cover reveal
• Pre-order Rebel Health
• I’ve got something to say
• Rebel Health
• A survey about clinical trial support groups
• Caregiver starter pack
• The Promise of Patient-Led Research Integration
• Public Q&A: Human-centered design
• Public Q&A: Impact review
• The Next Big Thing in Health
• Engage with Grace
• Patient-led innovation
• Champions fast-track innovations
• Solvers attack problems
• Networkers pool resources
• Seekers go out on the hunt
• Too legit to quit
• Caregiving is not a “career break”
• Designing Peer-to-peer Health
• Case study: Injection tips
• What can we do by Tuesday?
• Case study: Trevor’s disease
• Lisa Suennen adds a dash of salt
• Whose needs are not met?
• Should peer health community moderators get paid?
• Celebrating #BCSM as a peer health innovation
• Consumer-strength tools, industrial-strength innovation
• Peer health playbooks
• Doing the work
• Inventing the future
• Data-driven support for vulnerable populations
• A futurist’s perspective on LongCovid
• LGBTQ+ youth are reaching out for help
• Depression, social media use, and digital health
• Coping with COVID-19
• From stunt to solution
• Standing ovation… then crickets
• The Data Puzzle of Our Time
• “I’ve been there, let’s change things” innovation
• LongCovid’s citizen scientists
• Crazy, crazy, LongCovid, obvious
• HealthChangers: Mark Ganz
• Case study: Breast cancer
• What if we had people’s trust?
• Acceptable uses of health data
• Credible, useful, helpful, trustworthy
• How connection can lead to change
• Lessons learned about hospice care
• Elegy for A. and M.
• Peer-to-peer advice for caregivers
• Patient-led research is a key element of pandemic response
• Zooming into each other’s homes
• Advancing clinical registries to support pandemic treatment and response
• How peer-to-peer health advice can help people take their meds on time (and so much more)
• Accelerating real-time electronic data capture for COVID-19 tracking and response