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- Digital Health Practices Among Teens and Young Adults: Key Findings
- Fact sheet: differences between young women and young men in their use of social media, online health resources
- Fact sheet: teens and young adults, social media, online health resources
- How Young People Use Digital Media to Manage Their Health
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Recent Posts:
- A survey about clinical trial support groups
- Caregiver starter pack
- The Promise of Patient-Led Research Integration
- Public Q&A: Human-centered design
- Impact review
- The Next Big Thing in Health
- Engage with Grace
- Patient-led innovation
- Champions fast-track innovations
- Solvers attack problems
- Networkers pool resources
- Seekers go out on the hunt
- Too legit to quit
- Caregiving is not a “career break”
- Designing Peer-to-peer Health
- Case study: Injection tips
- What can we do by Tuesday?
- Case study: Trevor’s disease
- Lisa Suennen adds a dash of salt
- Whose needs are not met?
- Should peer health community moderators get paid?
- Celebrating #BCSM as a peer health innovation
- Consumer-strength tools, industrial-strength innovation
- Peer health playbooks
- Doing the work
- Inventing the future
- Data-driven support for vulnerable populations
- A futurist’s perspective on LongCovid
- LGBTQ+ youth are reaching out for help
- Depression, social media use, and digital health
- Coping with COVID-19
- From stunt to solution
- Standing ovation… then crickets
- The Data Puzzle of Our Time
- “I’ve been there, let’s change things” innovation
- LongCovid’s citizen scientists
- Crazy, crazy, LongCovid, obvious
- HealthChangers: Mark Ganz
- Case study: Breast cancer
- What if we had people’s trust?
- Acceptable uses of health data
- Credible, useful, helpful, trustworthy
- How connection can lead to change
- Lessons learned about hospice care
- Elegy for A. and M.
- Peer-to-peer advice for caregivers
- Patient-led research is a key element of pandemic response
- Zooming into each other’s homes
- Advancing clinical registries to support pandemic treatment and response
- How peer-to-peer health advice can help people take their meds on time (and so much more)
- Accelerating real-time electronic data capture for COVID-19 tracking and response
- Connecting during COVID-19
- Signs of the times: Black Lives Matter
- “For Black people, Minneapolis is a metaphor for our world.”
- Leveraging data-driven patient participation to accelerate medical research
- Tracking the trackers
- Building an intake valve for new ideas
- Pandemic problem-solving
- Surviving a pandemic like an artist
- Why entrepreneurs should listen to patients & caregivers
- Public Q&A: COVID19 precautions and care
- Bits of beauty
- Public Q&A: Peer advice during a pandemic
- Public Q&A: Patient registries
- Project management for caregivers
- Public Q&A: Peer support for parents of teens with cancer
- What if your clinician gave you a prescription to check out a patient group that they knew to be good?
- Chasing cures
- Crowd-diagnosing STDs on Reddit
- How might we push power out to the edges of the network?
- Why I (finally) signed up for health data access
- How to make 10 million discoveries
- Mystery solved. Again.
- Public Q&A: conference organizing
- What I’m reading and admiring…
- What’s your advice?
- Cheese, whisky, and health data
- Sunflowers turn to each other for help
- Why should anyone care about health data interoperability?
- Chasing cures
- A helping hand, just in time
- Assessing the quality of peer health advice
- Public Q&A: Acronyms, protocol, and other lessons learned from switching fields
- Celebrating invention and innovation
- A Matter of Trust, Perception, Risk, and Uncertainty
- Mapping the health data landscape
- We need a digital health Cajun Navy
- Update: A Seat at the Table
- “Human stories really are what drive us…”
- Better health, together
- Trust gap: Health apps and data sharing
- Half of 18- to 22-year-olds seek peer health advice online
- Paging fans of Dr. Google
- Art and data
- Health Datapalooza X
- Public Q&A: How to connect teens with health peers
- Rare but not alone
- Building the evidence base for peer health advice
- Rare Disease Day 2019
- Celebrating innovation as a problem-solving tool in government
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