• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Writing
    • greatest hits
    • beauty and wonder
    • demographics
    • featured commenters
    • health data
    • key people
    • peer-to-peer health care
    • positive patterns
    • public Q&A
    • trends & principles
  • Research
    • How Young People Use Digital Media to Manage Their Health
    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
  • About me
    • Now
    • Curriculum vitae
  • Upcoming events

peer-to-peer health care

Caregiver starter pack

January 31, 2023 By Susannah Fox 4 Comments

A field of sunflowers bathed in golden light

We usually don’t get to choose when to become caregivers. A crisis hits and we are dropped into a maze populated by scary monsters, like family conflict or financial ruin, and no guides. This happened to a friend of mine recently and, when her loved one’s situation stabilized, I sent her 3 things: 1. A […]

Filed Under: peer-to-peer health care Tagged With: ARCHANGELS, Atlas of Care, BJ Miller, caregivers, Engage with Grace, Rajiv Mehta, Shoshana Berger

The Next Big Thing in Health

December 15, 2022 By Susannah Fox 3 Comments

AHIP: The Next Big Thing in Health podcast logo

This week I was a guest on the Next Big Thing in Health podcast (listen here or wherever you get your podcasts). I thought I’d share links to some of the people and resources I mention: ARCHANGELS WORK helps people translate the skills and experiences they acquired as caregivers into talking points for a job […]

Filed Under: peer-to-peer health care Tagged With: AA, ACT-UP, ARCHANGELS, Atlas of Care, caregivers, Long Covid, National Breast Cancer Coalition, Patient-Led Research Collaborative, podcast

Patient-led innovation

November 7, 2022 By Susannah Fox 28 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

I am curating a list of organizations that are putting patient-led innovation to work. What follows is an incomplete list — please help me by sharing YOUR favorite peer-to-peer communities in the comments below. Extra credit if you can share how they have had an impact on the public conversation, treatment of a condition, device […]

Filed Under: patient networks, peer-to-peer health care Tagged With: MIT Press, peer-to-peer healthcare

Solvers attack problems

May 31, 2022 By Susannah Fox 6 Comments

Axes, pliers, hammers hung on a wooden wall

Solvers identify challenges, then test and develop new concepts, code, and inventions to meet their needs. They work on a problem with a singular focus because their life – or the life of a loved one – often depends on their ability to find or invent a solution. Some Solvers openly share their designs online for […]

Filed Under: key people, peer-to-peer health care Tagged With: Invent Health, maker movement, MIT Press, peer-to-peer healthcare

Networkers pool resources

May 23, 2022 By Susannah Fox 11 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

“You are not alone.” People who are newly diagnosed or facing a health challenge long to hear those words. Connection is an antidote to suffering and confusion. When they are able to tap into peer-to-peer networks of patients and caregivers, Networkers learn in community about their condition, shrug off the burdens of isolation and shame, then urge […]

Filed Under: key people, peer-to-peer health care Tagged With: MIT Press, peer-to-peer healthcare

Too legit to quit

April 18, 2022 By Susannah Fox 17 Comments

Sunflowers with a bee

Sara Riggare, PhD, an expert in patient-led research and personal science, tweeted this animated GIF depicting the common process in starting personal science, which is based on Anne Wright’s work: Andrea Downing was among those who replied, writing: “My feedback: We’ve been saying for years what you outline here. The question is: how do we […]

Filed Under: health data, key people, peer-to-peer health care, research issues Tagged With: Andrea Downing, Anne Wright, Dana Lewis, Gary Wolf, Long Covid, personal science, Quantified Self, Sara Riggare, Unrest

  • Go to page 1
  • Go to page 2
  • Go to page 3
  • Interim pages omitted …
  • Go to page 21
  • Go to Next Page »

Before Footer

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Recent Comments

  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38
  • Rajiv Mehta on Caregiver starter pack: “I know how important it is that the initial help is measured and focused — enough to be helpful immediately,…” Jan 31, 11:34
  • Susannah Fox on Caregiver starter pack: “Yes! Creating a habit of taking breaks, or putting on your own oxygen mask, is key. I realized that the…” Jan 31, 08:46

Footer

Follow me on Twitter

My Tweets

Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

popular posts

  • Caregiver starter pack
  • Hack needed: Tiny pills, trembling hands
  • Engage with Grace
  • The Value of Data

Explore

Copyright Susannah Fox © 2023 · WordPress · Log in