Every day I see a new example of a survey or other tool to collect individual-level experiences with COVID-19. Some are organized at the grassroots, others are sponsored by companies or academic medical centers. Some are for support, others for epidemiology, and still others for clinical discovery. Some would be recognized as patient registries, others […]
peer-to-peer health care
Pandemic problem-solving
The COVID19 pandemic is forcing everyone to learn new skills on the fly. Clinicians are teaching each other how to hotwire a ventilator to serve more than one patient. People are 3D printing spare parts for medical equipment and learning how to sew protective masks. Parents are sharing strategies for convincing their teenagers to stay home – and […]
Surviving a pandemic like an artist
Through her work as a film-maker, Maggie Whittum helps the rest of us make sense of this upside-down world we find ourselves in. And she reminds us that, unfortunately, this disorientation is familiar to people who survive stroke. Andrew Simonet, founder and director of Artists U, recently wrote an essay entitled, “This is What We […]
Why entrepreneurs should listen to patients & caregivers
I am thrilled to share this excerpt from the Harvard Business Review article I wrote, “How Chronic-Disease Patients Are Innovating Together Online”: The internet gives us virtually unlimited access to each other. That deceptively simple insight is an untapped opportunity in health care. When companies are searching for their next idea, they should look to […]
Public Q&A: COVID19 precautions and care
As a trusted node on my friends’ “nerd network” (i.e., the people who are known to dig in and research everything so others may not have to) I have been asked a few questions that I’d like to share, in the hopes that other people can add their own perspectives — and new questions! Question: […]
Public Q&A: Peer advice during a pandemic
A community colleague wrote: Our neighborhood list serve has all sorts of ‘advice’. I’ll spare you:) Are you able to assess how peer-to-peer exchange is playing out with all of this? In the spirit of Public Q&A, I invite readers to join me in responding: Yes. I’m seeing a ton of peer-to-peer exchanges of information, […]
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