Dr. Joe Kvedar interviewed me for his podcast, Well/Connected, and I thought I’d share footnotes for all the resources I mentioned. Key findings from the national survey of 14- to 22-year-olds focused on digital health and social media use, sponsored by Hopelab and Well Being Trust, which took a special look at people living with […]
peer-to-peer health care
Peer support for when the system fails
What do you do when you know something is wrong but you can’t find anyone to confirm your suspicions? Or when you finally identify the culprit but find out that other people are being kept in the dark? These days it’s likely that you go online and if you are lucky — or determined — […]
Social media as a platform for hope
I’ve been thinking about how people react to a crisis. How, if we are lucky, we find ways to lend and borrow expertise to get through it. And how we lend and borrow courage. In the American South, there is something called the Cajun Navy, an ad hoc, informal group of people who use their […]
A deep dive into food allergy research and education
Longtime followers of this blog know I believe in the power of peers, particularly among people living with rare conditions, and may also know that I am a food-allergy mom. This past weekend I had the chance to attend the annual conference for my rare community, FAREcon, and drink from the peer advice well. Warning: This […]
Peer health advice among teens and young adults
Six years ago, the last time I had the opportunity to measure it, a Pew Research survey found that about two in ten U.S. adults have gone online to find people who might have health concerns similar to theirs. Now, in a report we published on July 31, a Hopelab/Well Being Trust survey of 14- to […]
Digital health practices among teens and young adults in the U.S.
I am thrilled to share new, national survey data on the digital health landscape. Thanks to funding and guidance from Hopelab and the Well Being Trust, Vicky Rideout and I measured how teens and young adults (14- to 22-year-olds) pursue health and well-being using the tools at their disposal — apps, peer advice, online communications […]
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