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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

Wow! How? Social Support Matters

November 21, 2024 By Susannah Fox Leave a Comment

5 hands gripping 5 wrists

Most people, at the time of their diagnosis with a sleep disorder, do not know a single other person with the same condition. Yet peer support is an effective aid to this group, just as it has been shown to help people navigating pregnancy, living with diabetes, recovering from organ transplant, and managing many other […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers Tagged With: hypersomnia, Julie Flygare, narcolepsy, Project Sleep, Rebel Health, sleep disorders, Wow! How? Health

Wow! How? In-your-face Expertise

September 5, 2024 By Susannah Fox 2 Comments

Wow! How? Health

This post is part of my LinkedIn series: Wow! How? Health. I welcome comments on either platform. Thirty-three years ago today, on September 5, 1991, activists unfurled a giant, inflatable condom over a U.S. Senator’s house. Don’t believe me? Watch a 30-second news clip or a 5-minute documentary about the action. It was a splashy way […]

Filed Under: Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: ACT-UP, chronic pain, cluster headache, HIV/AIDS, Joanna Kempner, Long Covid, National Breast Cancer Coalition, Peter Staley, psychedelics, Steven Epstein, TAG, Wow! How? Health

Wow! How? Patient Memoirs

August 29, 2024 By Susannah Fox 2 Comments

Four books: The Long Haul; Chasing My Cure; AfterShock; Wide Awake and Dreaming

In his book, The Long Haul, Ryan Prior writes about his advocacy on behalf of people with ME/CFS: Though I had negotiated a fragile truce with the disease, my deeper fear was that it would eventually fully disable me, just as it had done for so many of my friends…At the edge of my every thought […]

Filed Under: Champions, key people, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: cancer, David Fajgenbaum, Jessie Gruman, Julie Flygare, Long Covid, Lucy Grealy, ME/CFS, narcolepsy, rare diseases, Ryan Prior, Wow! How? Health

Wow! How? Peer Support for Queer Youth

July 25, 2024 By Susannah Fox Leave a Comment

A young woman holds her phone up so it blocks her face. Background is a field of yellow flowers.

Today’s “wow” is unfortunately a troubling statistic: 49% of LGBTQ+ young people in the U.S. experience depressive symptoms, according to a survey conducted by Hopelab and Common Sense Media, compared with 24% of their straight and cisgender peers. But many Queer youth are meeting the challenge by accessing online therapy to a greater degree (44%, […]

Filed Under: Champions, demographics, peer-to-peer health care, research issues, social media Tagged With: Amy Green, Common Sense Media, HopeLab Foundation, LGBTQ, Rebel Health, TRACE, Wow! How? Health

Wow! How? Patient-led Biodesign

July 11, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

This post is part of my LinkedIn series: Wow! How? Health. Jules Sherman designs pediatric medical products, like a delayed cord-clamping cart and a special robe to help make neonatal skin-to-skin care safer. In 2016, she was called into a hospital room to observe a new mom using a device that Sherman had created to collect […]

Filed Under: Champions, maternity, peer-to-peer health care, Solvers Tagged With: Jules Sherman, Rebel Health, Wow! How? Health

Wow! How? Obesity Treatment

June 28, 2024 By Susannah Fox Leave a Comment

Cartoon of 4 people exercising, holding a laptop, or holding a book

This post is part of my LinkedIn series: Wow! How? Health. Four in ten U.S. adults have obesity, according to the National Center for Health Statistics. That includes 9% of U.S. adults with severe obesity, which is defined as having a body mass index over 40. Shame and stigma compound their health problems. “You wear […]

Filed Under: Champions, health data, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: diet, Elina Onitskansky, Ilant Health, obesity, Rebel Health, Wow! How? Health

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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