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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

Case study: Injection tips

January 6, 2022 By Susannah Fox 6 Comments

Bee harvesting pollen from a yellow flower

Friends are starting fertility treatments and are somewhat nervous about all the required injections. Since there’s nothing quite like “been there” guidance, I harvested some peer health advice for them and thought I’d post it here in case people had more to share. First, I thought about whom I would personally turn to for advice. […]

Filed Under: maternity, peer-to-peer health care Tagged With: case study, injection, pregnancy

Case study: Trevor’s disease

October 4, 2021 By Susannah Fox 2 Comments

Downhill mountain bike racer in motion

A friend recently shared the following story of his successful navigation of the American health care system to get innovative treatment for his ankle. I was so impressed that I thought I’d post it here as a beacon for anyone else searching for answers about the same challenges he has faced. It’s pretty geeky and […]

Filed Under: peer-to-peer health care Tagged With: ankle, ankle cartilage transplants, arthritis, bone spurs, case study, Matt Might, surgery, Trevor's Disease

Lisa Suennen adds a dash of salt

October 3, 2021 By Susannah Fox 5 Comments

Close up photo of a salt shaker

My friend Lisa Suennen, aka @VentureValkyrie, wrote a thought-provoking response to the framework I shared a few weeks ago. She says she’s adding a cynical point of view. I’d say she’s adding much-needed salt. The whole post is worth your time to read, so please do click through. Here’s an appetizer: “Susannah asked for feedback […]

Filed Under: peer-to-peer health care Tagged With: Lisa Suennen, Lyme Disease, MIT Press, peer health innovation

Whose needs are not met?

September 8, 2021 By Susannah Fox 19 Comments

Questions marks painted on pavement

For years I tried to find ways to explain the particular challenges facing people with undiagnosed and rare health conditions. I decided to create a visualization showing the wide spectrum of people’s health needs and I’d like some feedback on it. Imagine a horizontal line. At the far left side are the people whose needs […]

Filed Under: peer-to-peer health care Tagged With: ALS, Alzheimers, chronic pain, cystic fibrosis, eating disorders, LongCovid, Matthew Trowbridge, ME/CFS, menopause, MIT Press, myalgic encephalomyelitis, peer health innovation, Rare Disease

Should peer health community moderators get paid?

September 2, 2021 By Susannah Fox 29 Comments

Sandhill cranes taking flight at sunrise

Evidence is piling up in favor of peer health communities. The question is: How do we sustain them for the long-term? Here are 3 studies (of many) about the benefits of peer-to-peer health advice: A survey of the #bcsm community found that participation lowered people’s anxiety and increased their overall knowledge of breast cancer. A survey of […]

Filed Under: key people, patient networks, peer-to-peer health care Tagged With: #bcsm, breast cancer, CGM in the Cloud, Deanna Attai, diabetes, epilepsy, patientslikeme

Celebrating #BCSM as a peer health innovation

August 20, 2021 By Susannah Fox 6 Comments

A man and woman walking on a trail

Cancer patients were among my first peer health innovation teachers and remain, years later, among my favorite communities to follow. I keep an eye out for hashtags like #gyncsm (gynecological cancer social media), #bcsm (breast cancer social media), and #lcsm (lung cancer social media) on Twitter. I listen to podcasts like The Cancer Mavericks (and […]

Filed Under: e-patient stories, patient networks, peer-to-peer health care, pts as teachers Tagged With: #bcsm, #gyncsm, #hcsm, #lcsm, Alexandra Drane, Alicia Stales, breast cancer, Dana Lewis, Deanna Attai, Elizabeth O'Riordan, Jodi Sperber, Jody Schoger, Leslie Schover, Matthew Zachary, peer health innovation, Trisha Greenhalgh, Unmentionables

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