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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

Wow! How? Dr. Reddit

March 15, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

A positive psychedelic experience can make you feel at one with the universe. A bad trip can make you feel psychotic. People who want a relatively safer experience have two choices: 1.     Ask a friend to stay sober and be a calming guide (called a “trip sitter”) 2.     Have remedies on hand to blunt or […]

Filed Under: Networkers, peer-to-peer health care Tagged With: British Medical Journal, psychedelics, Rebel Health, Reddit, sexual health, Wow! How? Health

Wow! How? Eating disorder recovery

March 7, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Thirty million people in the U.S. will have a clinically significant eating disorder at some point in their lives. Treatment gaps mean that only a fraction of sufferers will receive the care they need due to the high cost of traditional, in-patient treatment and a scarcity of mental health professionals available for some populations and […]

Filed Under: Champions, peer-to-peer health care, Solvers Tagged With: eating disorders, Equip, Erin Parks, Kristina Saffran, Rebel Health, Wow! How? Health

Rebel Health

February 13, 2024 By Susannah Fox 4 Comments

Book cover: Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care by Susannah Fox. Blue type on a yellow field

My book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, is out in the world! You can pick up a copy at your favorite local bookstore (mine is Politics & Prose) or order it from Barnes & Noble, Amazon, or another online retailer. Thank you for being part of this journey! I use this blog […]

Filed Under: patient networks, peer-to-peer health care Tagged With: MIT Press, Rebel Health

Wow! How? Community Consults

February 1, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

“Lana,” a woman I interviewed who asked that her real name not be used, lives with mitochondrial disease and is an active member of a private Facebook group of people who share her diagnosis. Some of the members have become experts in drug interactions particular to “mito” and offer guidance to others based on their […]

Filed Under: Networkers, patient networks, peer-to-peer health care, pt/doc co-care, Seekers Tagged With: Facebook, Jack Saul, mitochondrial disease, Rebel Health, Wow! How? Health

Public Q&A: Rare Disease and Rebel Health

January 19, 2024 By Susannah Fox Leave a Comment

Rebel Health: A field guide to the patient-led revolution in medical care

The Global Genes RARE Advocacy Summit in September 2023 provided a forum for me to talk, for the first time, about my upcoming book and how rare disease communities have been a key part of my professional life. Here’s a set of questions that Sravanthi Meka of Global Genes asked me in advance of the meeting: […]

Filed Under: Champions, health data, Networkers, peer-to-peer health care, public Q&A, Seekers, Solvers Tagged With: Global Genes, Hhs, Long Covid, MIT Press, Rare Disease, Rebel Health

Wow! How? Peer Support

January 11, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Hank Azaria’s tribute to Matthew Perry was as much a love letter to peer support as it was a remembrance of his friend: “…as bad as we feel, as low as we go, we tend to feel we’re alone in it, whether our problem is alcoholism, a bad marriage, illness, depression, strife. We feel that […]

Filed Under: Networkers, peer-to-peer health care, policy issues Tagged With: AA, Esther Perel, Gabrielle Glaser, Rebel Health, SAHMSA

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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