A positive psychedelic experience can make you feel at one with the universe. A bad trip can make you feel psychotic. People who want a relatively safer experience have two choices: 1. Ask a friend to stay sober and be a calming guide (called a “trip sitter”) 2. Have remedies on hand to blunt or […]
peer-to-peer health care
Wow! How? Eating disorder recovery
Thirty million people in the U.S. will have a clinically significant eating disorder at some point in their lives. Treatment gaps mean that only a fraction of sufferers will receive the care they need due to the high cost of traditional, in-patient treatment and a scarcity of mental health professionals available for some populations and […]
Rebel Health
My book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, is out in the world! You can pick up a copy at your favorite local bookstore (mine is Politics & Prose) or order it from Barnes & Noble, Amazon, or another online retailer. Thank you for being part of this journey! I use this blog […]
Wow! How? Community Consults
“Lana,” a woman I interviewed who asked that her real name not be used, lives with mitochondrial disease and is an active member of a private Facebook group of people who share her diagnosis. Some of the members have become experts in drug interactions particular to “mito” and offer guidance to others based on their […]
Public Q&A: Rare Disease and Rebel Health
The Global Genes RARE Advocacy Summit in September 2023 provided a forum for me to talk, for the first time, about my upcoming book and how rare disease communities have been a key part of my professional life. Here’s a set of questions that Sravanthi Meka of Global Genes asked me in advance of the meeting: […]
Wow! How? Peer Support
Hank Azaria’s tribute to Matthew Perry was as much a love letter to peer support as it was a remembrance of his friend: “…as bad as we feel, as low as we go, we tend to feel we’re alone in it, whether our problem is alcoholism, a bad marriage, illness, depression, strife. We feel that […]
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