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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

Wow! How? Drug Interactions

November 3, 2023 By Susannah Fox Leave a Comment

Two sets of hands sort pills into a pillbox

This is a cross-post from my LinkedIn newsletter. Feel free to join the conversation there or post your thoughts in the comments below. People who connect with health peers are able to pool knowledge, track data, and disseminate what they learn. For some, it’s the difference between life and death. For example, Peggy, a woman […]

Filed Under: Networkers, patient networks, peer-to-peer health care, Seekers Tagged With: drugs, kidney disease, Marfan syndrome, medical errors, Networkers, Rebel Health, Seekers, Wow! How? Health

Wow! How? Diagnosis

October 26, 2023 By Susannah Fox 5 Comments

Questions marks painted on pavement

“Anne” is a mother I met in my fieldwork who was happy to share her story, but not her name.  Her son had become sick very suddenly, complaining of a combination of symptoms that were difficult to pinpoint. Anne took him from one specialist to another, who performed test after test, but they could find […]

Filed Under: patient networks, peer-to-peer health care, Seekers Tagged With: Diagnosis, Ehlers Danlos, Marfan syndrome, POTS, Rebel Health, Seekers, Wow! How? Health

Wow! How? Health

October 13, 2023 By Susannah Fox 6 Comments

Wow! How? Health

Wow! How? Health is a LinkedIn newsletter that will feature the Wow! stories of patients, survivors, and caregivers who are doing extraordinary things, along with the How? lessons that we all can learn. Subscribe to the newsletter or to my blog (I’ll cross-post here). Today’s story is about how connecting with a peer, a “just-in-time someone-like-you,” can make all the […]

Filed Under: key people, Networkers, patient networks, peer-to-peer health care Tagged With: cancer, caregivers, Networkers, Wow! How? Health

Cover reveal

October 2, 2023 By Susannah Fox 9 Comments

Book cover: Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care by Susannah Fox. Blue type on a yellow field

I am thrilled to share the cover design for my upcoming book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, set to come out in February 2024 from MIT Press. The design is inspired by what Clara Ganz created for me — a bright, joyful color scheme with a type treatment […]

Filed Under: patient networks, peer-to-peer health care Tagged With: MIT Press, Rebel Health

Pre-order Rebel Health

September 6, 2023 By Susannah Fox 2 Comments

Rebel Health: A field guide to the patient-led revolution in medical care

If you are likely to buy a paper copy of my upcoming book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, Barnes & Noble is offering a 25% discount if you order by September 8, 2023. Here’s a direct link. Note: you need to create a free account and use the […]

Filed Under: patient networks, peer-to-peer health care Tagged With: MIT Press, Rebel Health

I’ve got something to say

July 24, 2023 By Susannah Fox 2 Comments

Green and purple kaleidoscopic lights on the ceiling of a stage in front of a large audience

I have never done much marketing for myself as a keynote speaker, but I am on a mission to change the world. It’s not time to be shy. I want everyone to understand the power and potential of patients, survivors, and caregivers connecting with each other to solve problems. My upcoming book, Rebel Health, is […]

Filed Under: peer-to-peer health care Tagged With: conferences, Keynote, MIT Press, Rebel Health

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Topics

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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