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Susannah Fox

I help people navigate health and technology.

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MIT Press

Networkers pool resources

May 23, 2022 By Susannah Fox 11 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

“You are not alone.” People who are newly diagnosed or facing a health challenge long to hear those words. Connection is an antidote to suffering and confusion. When they are able to tap into peer-to-peer networks of patients and caregivers, Networkers learn in community about their condition, shrug off the burdens of isolation and shame, then urge […]

Filed Under: key people, peer-to-peer health care Tagged With: MIT Press, peer-to-peer healthcare

Seekers go out on the hunt

May 19, 2022 By Susannah Fox 2 Comments

As I’ve shared in previous posts, I’m writing a book for MIT Press about the key role that peer health advice plays at every level of our health care system. The people I’m describing in my book do not wait to be invited to create opportunities for positive change. They seize opportunities to take action. They reject […]

Filed Under: key people Tagged With: MIT Press, peer-to-peer healthcare

Lisa Suennen adds a dash of salt

October 3, 2021 By Susannah Fox 5 Comments

Close up photo of a salt shaker

My friend Lisa Suennen, aka @VentureValkyrie, wrote a thought-provoking response to the framework I shared a few weeks ago. She says she’s adding a cynical point of view. I’d say she’s adding much-needed salt. The whole post is worth your time to read, so please do click through. Here’s an appetizer: “Susannah asked for feedback […]

Filed Under: peer-to-peer health care Tagged With: Lisa Suennen, Lyme Disease, MIT Press, peer health innovation

Whose needs are not met?

September 8, 2021 By Susannah Fox 19 Comments

Questions marks painted on pavement

For years I tried to find ways to explain the particular challenges facing people with undiagnosed and rare health conditions. I decided to create a visualization showing the wide spectrum of people’s health needs and I’d like some feedback on it. Imagine a horizontal line. At the far left side are the people whose needs […]

Filed Under: peer-to-peer health care Tagged With: ALS, Alzheimers, chronic pain, cystic fibrosis, eating disorders, LongCovid, Matthew Trowbridge, ME/CFS, menopause, MIT Press, myalgic encephalomyelitis, peer health innovation, Rare Disease

Consumer-strength tools,
industrial-strength innovation

August 10, 2021 By Susannah Fox Leave a Comment

Group of people in front of huge screen of numbers

On August 31, I’ll be part of the 2021 Federal Wearables Summit. This post is my attempt to “flip” the event by sharing what I intend to say. Please let me know what you think in the comments below. In 1986, Eric von Hippel of MIT identified “lead users” as people who identify and solve […]

Filed Under: health data, patient networks, peer-to-peer health care, policy issues Tagged With: Body Politic, Cajun Navy, Eric von Hippel, Fiona Lowenstein, LongCovid, MIT Press, Patient-Led Research Collaborative, Rock Health, self-tracking, wearables

Doing the work

July 9, 2021 By Susannah Fox 19 Comments

Close-up photo of a green leaf

I am thrilled to share that I am writing a book for MIT Press about the alchemy, grit, and soul of the health innovation pipeline that is powered by people connecting with each other to solve problems. Here’s the back story, which illustrates one of my core principles: Do the work that needs to get […]

Filed Under: health data, patient networks, peer-to-peer health care Tagged With: Bob Prior, Body Politic, Emily Sirotich, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, Jennifer Brea, Kate Lorig, LongCovid, MIT Press, Tanya Basu

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Recent Comments

  • Kevin Lawrence on Networkers pool resources: “Thank you, Casey! I know Charlie second-hand, through Gilles but we’ve never connected. I’ll reach out!” May 26, 09:56
  • Mighty Casey on Networkers pool resources: “Wow, Kevin, you’re juggling a lot! Glad you’ve found some resources/connections, would definitely say that #btsm is a good source…” May 26, 09:31
  • Susannah Fox on Networkers pool resources: “Kevin, I’m at a loss for words at the depth of the insights and poignancy you shared here. Let’s begin…” May 26, 08:32

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Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

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