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Susannah Fox

I help people navigate health and technology.

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caregivers

Lessons learned about hospice care

October 19, 2020 By Susannah Fox 36 Comments

Thick trunk reaches up to the sky, sunlight filters through leaves

A loved one recently went over the cancer waterfall and I dove in after him, keeping his head above water long enough to say goodbye to everyone. It was an intense four weeks of caregiving – two in the hospital and two at home, in hospice.  I am sharing one segment of our story to […]

Filed Under: e-patient stories, end of life Tagged With: caregivers, family, hospice, Medicare, peer-to-peer healthcare, Renee Berry

Elegy for A. and M.

August 31, 2020 By Susannah Fox 16 Comments

Elegy for unaccompanied viola, by Benjamin Britten

I grew up rich in cousins. I spent holidays with my first cousins and lived, starting at age 11, in the same town with second cousins (the children of my mother’s first cousin) AND a first cousin twice removed (my grandmother’s first cousin – each generation that separates us is the “removed” part). Don’t worry, […]

Filed Under: beauty and wonder, end of life Tagged With: caregivers, end of life, family

Peer-to-peer advice for caregivers

August 24, 2020 By Susannah Fox 2 Comments

5 hands gripping 5 wrists

Longtime readers of my blog know that I’m a caregiver. I helped care for my grandparents and my father until the end of their lives and I’m currently caring for an “uncle” (he is my cousin’s widower, but it’s easier to just tell people I’m his niece). I’m also obsessed with amplifying the lessons we […]

Filed Under: peer-to-peer health care Tagged With: Alexandra Drane, caregivers, Charlie Montreuil

Public Q&A: Peer advice during a pandemic

March 19, 2020 By Susannah Fox 17 Comments

A community colleague wrote: Our neighborhood list serve has all sorts of ‘advice’. I’ll spare you:) Are you able to assess how peer-to-peer exchange is playing out with all of this? In the spirit of Public Q&A, I invite readers to join me in responding: Yes. I’m seeing a ton of peer-to-peer exchanges of information, […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: caregivers, COVID19, Heather Pierce, Judith Graham, Matt Might, Rachel Martens, ZDoggMD

Project management for caregivers

March 1, 2020 By Susannah Fox 22 Comments

Cancer worksheet

I am a caregiver. I help coordinate the health and home care for an elder loved one who, for the purposes of maintaining a bit of anonymity, I will call “M.” He is a healthy, happy octogenarian. We have known each other for nearly 40 years, but we are not related by blood. I am […]

Filed Under: peer-to-peer health care, shared decision making Tagged With: cancer, caregivers, design, elderly, end of life, family, Older Adults

Public Q&A: Peer support for parents of teens with cancer

February 24, 2020 By Susannah Fox 9 Comments

Peer to peer health advice: your community may really be your superpower

Helen Burstin, MD, reached out to ask if I know of an online peer-to-peer support group for parents of teens with cancer. For anyone who knows Helen: Don’t worry, it’s not for her own family. She is asking on behalf of a friend, who writes: “I’ve been able to find groups for parents of children […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: cancer, caregivers, family, parents, peer-to-peer healthcare, teens

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