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Susannah Fox

I help people navigate health and technology.

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family

Lessons learned about hospice care

October 19, 2020 By Susannah Fox 36 Comments

Thick trunk reaches up to the sky, sunlight filters through leaves

A loved one recently went over the cancer waterfall and I dove in after him, keeping his head above water long enough to say goodbye to everyone. It was an intense four weeks of caregiving – two in the hospital and two at home, in hospice.  I am sharing one segment of our story to […]

Filed Under: e-patient stories, end of life Tagged With: caregivers, family, hospice, Medicare, peer-to-peer healthcare, Renee Berry

Elegy for A. and M.

August 31, 2020 By Susannah Fox 16 Comments

Elegy for unaccompanied viola, by Benjamin Britten

I grew up rich in cousins. I spent holidays with my first cousins and lived, starting at age 11, in the same town with second cousins (the children of my mother’s first cousin) AND a first cousin twice removed (my grandmother’s first cousin – each generation that separates us is the “removed” part). Don’t worry, […]

Filed Under: beauty and wonder, end of life Tagged With: caregivers, end of life, family

Project management for caregivers

March 1, 2020 By Susannah Fox 22 Comments

Cancer worksheet

I am a caregiver. I help coordinate the health and home care for an elder loved one who, for the purposes of maintaining a bit of anonymity, I will call “M.” He is a healthy, happy octogenarian. We have known each other for nearly 40 years, but we are not related by blood. I am […]

Filed Under: peer-to-peer health care, shared decision making Tagged With: cancer, caregivers, design, elderly, end of life, family, Older Adults

Public Q&A: Peer support for parents of teens with cancer

February 24, 2020 By Susannah Fox 9 Comments

Peer to peer health advice: your community may really be your superpower

Helen Burstin, MD, reached out to ask if I know of an online peer-to-peer support group for parents of teens with cancer. For anyone who knows Helen: Don’t worry, it’s not for her own family. She is asking on behalf of a friend, who writes: “I’ve been able to find groups for parents of children […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: cancer, caregivers, family, parents, peer-to-peer healthcare, teens

What’s your advice?

November 12, 2019 By Susannah Fox 19 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

My dad was a survivor — of a heart attack in his 50s, kidney cancer in his 60s, and an initial diagnosis of melanoma in his 70s. Melanoma recurrence and complications of treatment are what finally got him. A lifelong runner, Dad kept meticulous notes about his mileage and heart rate on paper. He bought […]

Filed Under: health data, peer-to-peer health care Tagged With: cancer, caregivers, family, Tracking for Health

Letter to shareholders

January 29, 2018 By Susannah Fox 28 Comments

Susannah Fox in the audience at a public event at the U.S. Dept of Health and Human Services

For tax purposes, I recently added up all the various sources of income I’d received in 2017. It was a real hodge-podge of a year since I left my appointment at the U.S. Department of Health and Human Services (HHS) and started working on my own projects again. This exercise brought home the lesson that […]

Filed Under: key people, positive patterns Tagged With: Cambia Health Solutions, caregivers, family, Hhs, Hope for Henry, HopeLab Foundation, Laurie Strongin, Margaret Laws, Mark Ganz, peer-to-peer healthcare, Warren Buffett

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Recent Comments

  • Kevin Lawrence on Networkers pool resources: “Thank you, Casey! I know Charlie second-hand, through Gilles but we’ve never connected. I’ll reach out!” May 26, 09:56
  • Mighty Casey on Networkers pool resources: “Wow, Kevin, you’re juggling a lot! Glad you’ve found some resources/connections, would definitely say that #btsm is a good source…” May 26, 09:31
  • Susannah Fox on Networkers pool resources: “Kevin, I’m at a loss for words at the depth of the insights and poignancy you shared here. Let’s begin…” May 26, 08:32

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  • Networkers pool resources
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