A loved one recently went over the cancer waterfall and I dove in after him, keeping his head above water long enough to say goodbye to everyone. It was an intense four weeks of caregiving – two in the hospital and two at home, in hospice. I am sharing one segment of our story to […]
family
Elegy for A. and M.
I grew up rich in cousins. I spent holidays with my first cousins and lived, starting at age 11, in the same town with second cousins (the children of my mother’s first cousin) AND a first cousin twice removed (my grandmother’s first cousin – each generation that separates us is the “removed” part). Don’t worry, […]
Project management for caregivers
I am a caregiver. I help coordinate the health and home care for an elder loved one who, for the purposes of maintaining a bit of anonymity, I will call “M.” He is a healthy, happy octogenarian. We have known each other for nearly 40 years, but we are not related by blood. I am […]
Public Q&A: Peer support for parents of teens with cancer
Helen Burstin, MD, reached out to ask if I know of an online peer-to-peer support group for parents of teens with cancer. For anyone who knows Helen: Don’t worry, it’s not for her own family. She is asking on behalf of a friend, who writes: “I’ve been able to find groups for parents of children […]
What’s your advice?
My dad was a survivor — of a heart attack in his 50s, kidney cancer in his 60s, and an initial diagnosis of melanoma in his 70s. Melanoma recurrence and complications of treatment are what finally got him. A lifelong runner, Dad kept meticulous notes about his mileage and heart rate on paper. He bought […]
Letter to shareholders
For tax purposes, I recently added up all the various sources of income I’d received in 2017. It was a real hodge-podge of a year since I left my appointment at the U.S. Department of Health and Human Services (HHS) and started working on my own projects again. This exercise brought home the lesson that […]
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