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Susannah Fox

I help people navigate health and technology.

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hospice

Lessons learned about hospice care

October 19, 2020 By Susannah Fox 37 Comments

Thick trunk reaches up to the sky, sunlight filters through leaves

A loved one recently went over the cancer waterfall and I dove in after him, keeping his head above water long enough to say goodbye to everyone. It was an intense four weeks of caregiving – two in the hospital and two at home, in hospice.  I am sharing one segment of our story to […]

Filed Under: e-patient stories, end of life Tagged With: caregivers, family, hospice, Medicare, peer-to-peer healthcare, Renee Berry

Chicken soup for decision-makers

September 13, 2013 By Susannah Fox 2 Comments

Ceramic casserole with a shino glaze by Marcia Halperin

Half of all health searches in the U.S. are done on behalf of someone else. That’s been a core finding of the Pew Research Center’s health portfolio since 2000. We have called information the new chicken soup of the digital age, brought to the bedside by people who want to help. Now, in the social […]

Filed Under: end of life, hc's problem list, shared decision making Tagged With: hospice, palliative care, Pew Internet, Pew Research Center, rehab

Listening to patients at Medicine 2.0

September 18, 2012 By Susannah Fox Leave a Comment

I wrote a long post on e-patients.net about my one day at Medicine 2.0 on Saturday. Here are a few highlights — people who focused on listening to patients and caregivers: “To learn listen well to impressions voiced by patients first” – Sally Okun of PatientsLikeMe closed her presentation with this poem.

Filed Under: patient networks, pts as teachers Tagged With: diabetes, hospice, medicine 2.0, patientslikeme

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Recent Comments

  • Susannah Fox on The Promise of Patient-Led Research Integration: “Thank you, Lorraine! I will check back on the June meeting to see how the agenda is built out. I’m…” May 9, 17:59
  • Lorraine Johnson on The Promise of Patient-Led Research Integration: “This is a timely topic Susannah! I am serving on the planning committee of The National Academies for a workshop…” May 7, 18:52
  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37

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