I wrote a long post on e-patients.net about my one day at Medicine 2.0 on Saturday. Here are a few highlights — people who focused on listening to patients and caregivers:
“To learn
listen well
to impressions
voiced by patients
first”
– Sally Okun of PatientsLikeMe closed her presentation with this poem.
“The irony is not lost on us that we are building a thriving community for the dying.”
– Colleen Young of the Virtual Hospice community.
An unforeseen activity of a Second Life community for people with diabetes: many would log on and just sit “outside” listening to the water and wind, instead of visiting the gym, community center, library, grocery store, etc. Follow-up interviews revealed that these participants used the time to self-soothe and reduce their anxiety — a mini vacation within their busy lives.
Another unforeseen activity: Beverages were the most popular category for research in the virtual grocery store. People wanted to find out how often they could drink alcohol.
– Constance Johnson of Duke University.
Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
Leave a Reply