I wrote a long post on e-patients.net about my one day at Medicine 2.0 on Saturday. Here are a few highlights — people who focused on listening to patients and caregivers:
“To learn
listen well
to impressions
voiced by patients
first”
– Sally Okun of PatientsLikeMe closed her presentation with this poem.
“The irony is not lost on us that we are building a thriving community for the dying.”
– Colleen Young of the Virtual Hospice community.
An unforeseen activity of a Second Life community for people with diabetes: many would log on and just sit “outside” listening to the water and wind, instead of visiting the gym, community center, library, grocery store, etc. Follow-up interviews revealed that these participants used the time to self-soothe and reduce their anxiety — a mini vacation within their busy lives.
Another unforeseen activity: Beverages were the most popular category for research in the virtual grocery store. People wanted to find out how often they could drink alcohol.
– Constance Johnson of Duke University.
Susannah Fox on The Promise of Patient-Led Research Integration: “Thank you, Lorraine! I will check back on the June meeting to see how the agenda is built out. I’m…” May 9, 17:59
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