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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

A survey about clinical trial support groups

March 8, 2023 By Susannah Fox 2 Comments

Gloved hands administering a shot to an arm

I love talking about peer-to-peer health care, noodling over survey research questions, and meeting new people. Thanks to an introduction from Craig Lipset, I recently got to do all three. Denell Lewis is a student in the final year of her Masters of Regulatory Affairs/ Masters in Law program at the University of Pennsylvania. She […]

Filed Under: research issues Tagged With: Clinical Trials, Craig Lipset, Denell Lewis, survey

Caregiver starter pack

January 31, 2023 By Susannah Fox 13 Comments

A field of sunflowers bathed in golden light

We usually don’t get to choose when to become caregivers. A crisis hits and we are dropped into a maze populated by scary monsters, like family conflict or financial ruin, and no guides. This happened to a friend of mine recently and, when her loved one’s situation stabilized, I sent her 3 things: 1. A […]

Filed Under: peer-to-peer health care Tagged With: ARCHANGELS, Atlas of Care, BJ Miller, caregivers, Engage with Grace, Rajiv Mehta, Shoshana Berger

The Promise of Patient-Led Research Integration

January 18, 2023 By Susannah Fox 5 Comments

In Dark Times Shine Your Light Brighter

The Council of Medical Specialty Societies (CMSS) and Patient-Led Research Collaborative (PLRC) have developed a collaborative research model for use by patients and patient organizations, funders, research institutions and other traditional biomedical research teams. The project was funded by a grant from the Patient-Centered Outcomes Research Institute (PCORI). The model is represented by a set […]

Filed Under: participatory research, patient networks, policy issues, research issues Tagged With: Council of Medical Specialty Societies, Gina Assaf, Hannah Wei, Patient-Led Research Collaborative, PCORI

Public Q&A: Human-centered design

January 9, 2023 By Susannah Fox 5 Comments

Questions marks painted on pavement

A community colleague recently tweeted an intriguing question: “Looking for a rec! Our grant team would like to have more knowledge & training around #HumanCenteredDesign for research & community engagement. Does anyone have #HCD trainings, modules, or programs they love?” She tagged a few people, including me, and a public conversation ensued. People shared resources, […]

Filed Under: positive patterns, public Q&A, research issues Tagged With: ARCHANGELS, Diana Forsythe, I AM ALS, IDEO, ImproveCareNow, Marina Nitze, Nick Sinai, Solve ME

Impact review

December 21, 2022 By Susannah Fox 17 Comments

Close-up photo of a green leaf

I conduct an impact review at the end of each year, looking back at how I spent my time. In 2018, I published a shareholder letter listing the questions I ask: Was the work (whether paid or pro bono) useful, soul enriching, or on my mission path? Did it have a positive impact on the […]

Filed Under: public Q&A

The Next Big Thing in Health

December 15, 2022 By Susannah Fox 3 Comments

AHIP: The Next Big Thing in Health podcast logo

This week I was a guest on the Next Big Thing in Health podcast (listen here or wherever you get your podcasts). I thought I’d share links to some of the people and resources I mention: ARCHANGELS WORK helps people translate the skills and experiences they acquired as caregivers into talking points for a job […]

Filed Under: peer-to-peer health care Tagged With: AA, ACT-UP, ARCHANGELS, Atlas of Care, caregivers, Long Covid, National Breast Cancer Coalition, Patient-Led Research Collaborative, podcast

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Recent Comments

  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
  • Diane on A survey about clinical trial support groups: “I’d love to hear about clinical trials of the new weight-loss drugs believed to help people with diabetes and pre-diabetes” Mar 8, 12:15
  • Dave deBronkart on Lessons learned about hospice care: “I want to add some things I’ve learned in the years since you posted this. First, it should be noted…” Feb 20, 16:44

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