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Susannah Fox

I help people navigate health and technology.

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Sara Riggare

Too legit to quit

April 18, 2022 By Susannah Fox 17 Comments

Sunflowers with a bee

Sara Riggare, PhD, an expert in patient-led research and personal science, tweeted this animated GIF depicting the common process in starting personal science, which is based on Anne Wright’s work: Andrea Downing was among those who replied, writing: “My feedback: We’ve been saying for years what you outline here. The question is: how do we […]

Filed Under: health data, key people, peer-to-peer health care, research issues Tagged With: Andrea Downing, Anne Wright, Dana Lewis, Gary Wolf, Long Covid, personal science, Quantified Self, Sara Riggare, Unrest

Designing Peer-to-peer Health

February 10, 2022 By Susannah Fox Leave a Comment

Susannah Fox Ep 59 Design Lab with Bon Ku

“How can peer to peer connection make a healthier society? Can Amazon reviews give us fresh insight into our health? Why do on-line patient communities represent an incredible untapped resource in healthcare? How can a co-designed death give us a fuller life?” Bon Ku and I explore these questions and more in Episode 59 of […]

Filed Under: end of life, peer-to-peer health care Tagged With: Alexandra Drane, BJ Miller, Bon Ku, Engage with Grace, Jodi Ferrier, John Costik, Laurie Strongin, Nightscout, podcast, Sara Riggare, Sarah Stephens Winnay, Yoko Sen

Mapping the health data landscape

June 17, 2019 By Susannah Fox 18 Comments

1490 map of the world by Henricus Marcellus shows great detail for Europe but only a rough idea of Africa and Asia

I think our understanding of the current health data landscape is about as accurate as a map of the world in the 15th century:  excruciatingly detailed in the areas we know well, but hilariously, woefully — even dangerously — incomplete when it comes to the areas of health and health care that lie beyond our […]

Filed Under: health data Tagged With: Cambia Health Solutions, electronic medical record, Health Data, Sara Riggare

Social media as a platform for hope

November 15, 2018 By Susannah Fox 1 Comment

A group of men stand in knee-deep flood waters with two kayaks. One man is in a kayak.

I’ve been thinking about how people react to a crisis. How, if we are lucky, we find ways to lend and borrow expertise to get through it. And how we lend and borrow courage. In the American South, there is something called the Cajun Navy, an ad hoc, informal group of people who use their […]

Filed Under: demographics, peer-to-peer health care Tagged With: Cajun Navy, demographics, flip teaching, peer-to-peer healthcare, Sara Riggare, social media

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  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38
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