Cancer patients were among my first peer health innovation teachers and remain, years later, among my favorite communities to follow. I keep an eye out for hashtags like #gyncsm (gynecological cancer social media), #bcsm (breast cancer social media), and #lcsm (lung cancer social media) on Twitter. I listen to podcasts like The Cancer Mavericks (and […]
Alexandra Drane
Peer-to-peer advice for caregivers
Longtime readers of my blog know that I’m a caregiver. I helped care for my grandparents and my father until the end of their lives and I’m currently caring for an “uncle” (he is my cousin’s widower, but it’s easier to just tell people I’m his niece). I’m also obsessed with amplifying the lessons we […]
Well/Connected
Dr. Joe Kvedar interviewed me for his podcast, Well/Connected, and I thought I’d share footnotes for all the resources I mentioned. Key findings from the national survey of 14- to 22-year-olds focused on digital health and social media use, sponsored by Hopelab and Well Being Trust, which took a special look at people living with […]
Let yourself in on your own secrets
I respect secrets. When my grandmother died at age 96 and a half, her final words were: “Erase my email.” Why? I don’t need to know. And she is not someone you want to cross (present tense — her spirit is still here with me, urging me to live a big life.) But I am […]
Let’s fix the culture of stress
The Unmentionables panel at Health 2.0 addressed issues we don’t talk about in public but which deeply affect our health and well-being. I posted the first set of videos last week — here is the second batch. Michael Painter, of the Robert Wood Johnson Foundation, talked about his personal perspective on stress and building a culture […]
“We must redefine health to include life.” – Alexandra Drane
The first videos from the Unmentionables panel at Health 2.0 are up: http://www.viddler.com/v/f3f37d94 Note that this video contains both the opening and closing segments — tons of wonderful research and insight courtesy of Alexandra Drane. Look out for our two surprise guests who share some fascinating data and very quotable quotes: “In health care we […]
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