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Susannah Fox

I help people navigate health and technology.

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public Q&A

Public Q&A: COVID19 precautions and care

March 31, 2020 By Susannah Fox 12 Comments

Woman wears a white baseball cap and a cloth mask over her nose and mouth

As a trusted node on my friends’ “nerd network” (i.e., the people who are known to dig in and research everything so others may not have to) I have been asked a few questions that I’d like to share, in the hopes that other people can add their own perspectives — and new questions! Question: […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: COVID19, end of life, palliative care, patientslikeme

Public Q&A: Peer advice during a pandemic

March 19, 2020 By Susannah Fox 17 Comments

A community colleague wrote: Our neighborhood list serve has all sorts of ‘advice’. I’ll spare you:) Are you able to assess how peer-to-peer exchange is playing out with all of this? In the spirit of Public Q&A, I invite readers to join me in responding: Yes. I’m seeing a ton of peer-to-peer exchanges of information, […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: caregivers, COVID19, Heather Pierce, Judith Graham, Matt Might, Rachel Martens, ZDoggMD

Public Q&A: Patient registries

March 9, 2020 By Susannah Fox 17 Comments

A community colleague asked for advice about how an organization can boost the signal for their patient registry. Recruitment levels are not what they expected and nowhere near what they need. I’m sharing what I wrote back so that others can chime in with their advice in the comments. First, look at what successful registries […]

Filed Under: health data, patient networks, public Q&A, research issues Tagged With: All of Us, cystic fibrosis, Erin Moore, ImproveCareNow, John Wilbanks, NIH, patient registries, Quality Improvement

Public Q&A: Peer support for parents of teens with cancer

February 24, 2020 By Susannah Fox 9 Comments

Peer to peer health advice: your community may really be your superpower

Helen Burstin, MD, reached out to ask if I know of an online peer-to-peer support group for parents of teens with cancer. For anyone who knows Helen: Don’t worry, it’s not for her own family. She is asking on behalf of a friend, who writes: “I’ve been able to find groups for parents of children […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: cancer, caregivers, family, parents, peer-to-peer healthcare, teens

What if your clinician gave you a prescription to check out a patient group that they knew to be good?

February 12, 2020 By Susannah Fox 44 Comments

Post-it notes fill one section of a diagram

Amy Gleason (@ThePatientsSide) captured this line of mine, delivered on a panel at the Health Datapalooza yesterday. Her tweet generated an interesting cascade of reactions ranging from: “This is potentially dangerous” to “This is obvious (and old news).” I thought I’d expand on my observations and see if people want to expand on theirs in […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: ACOR, Bon Ku, Danny Sands, David Fajgenbaum, E-Patient Dave, Health Datapalooza, peer-to-peer healthcare

How might we push power out to the edges of the network?

January 24, 2020 By Susannah Fox Leave a Comment

Oak tree leaves budding

Cambia Health Solutions’ podcast, HealthChangers, invited me to share a few lessons learned, both personally and professionally. Listen in or read the transcript (below): Leslie Constans: One of the things I wanted to kick off our conversation with was finding out a little bit about this idea of working at the intersection of health and technology […]

Filed Under: health data, public Q&A Tagged With: Cambia Health Solutions, caregivers, HopeLab Foundation, Pew Internet, Pew Research Center, Well Being Trust

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Recent Comments

  • Susannah Fox on Seekers go out on the hunt: “Thank you, Cam! So many nuggets of wisdom in your comment. Love the old-school spiral notebook combined with the digital…” May 20, 15:09
  • Cam Teems on Seekers go out on the hunt: “Susannah – First, as a seeker on behalf of my child, I had to gird my loins and know I…” May 19, 16:56
  • Susannah Fox on Caregiving is not a “career break”: “Thanks for the tip, Diane. Is this the article you read? Family Caregiving: A View From the Inside https://www.aarp.org/caregiving/home-care/info-2022/history-of-family-caregiving.html I…” May 9, 08:59

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