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Susannah Fox

I help people navigate health and technology.

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end of life

Elegy for A. and M.

August 31, 2020 By Susannah Fox 16 Comments

Elegy for unaccompanied viola, by Benjamin Britten

I grew up rich in cousins. I spent holidays with my first cousins and lived, starting at age 11, in the same town with second cousins (the children of my mother’s first cousin) AND a first cousin twice removed (my grandmother’s first cousin – each generation that separates us is the “removed” part). Don’t worry, […]

Filed Under: beauty and wonder, end of life Tagged With: caregivers, end of life, family

Public Q&A: COVID19 precautions and care

March 31, 2020 By Susannah Fox 12 Comments

Woman wears a white baseball cap and a cloth mask over her nose and mouth

As a trusted node on my friends’ “nerd network” (i.e., the people who are known to dig in and research everything so others may not have to) I have been asked a few questions that I’d like to share, in the hopes that other people can add their own perspectives — and new questions! Question: […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: COVID19, end of life, palliative care, patientslikeme

Project management for caregivers

March 1, 2020 By Susannah Fox 22 Comments

Cancer worksheet

I am a caregiver. I help coordinate the health and home care for an elder loved one who, for the purposes of maintaining a bit of anonymity, I will call “M.” He is a healthy, happy octogenarian. We have known each other for nearly 40 years, but we are not related by blood. I am […]

Filed Under: peer-to-peer health care, shared decision making Tagged With: cancer, caregivers, design, elderly, end of life, family, Older Adults

A good death

January 19, 2018 By Susannah Fox 28 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

You might think, looking at the open tabs on my browser, that I’ve got death on my mind. And you would be right. My father passed away in December from melanoma. The end was about as peaceful as we could have hoped for, but it was still hard to watch. I spent most of what […]

Filed Under: end of life, peer-to-peer health care Tagged With: cancer, end of life, family, Family Caregivers

Beyond one more search, one more prayer

June 10, 2013 By Susannah Fox 3 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

I had lunch today with Mona Hanford, who shared her vision for helping people navigate to the end of life, based on her own experience as a caregiver for her husband. Our conversation led us to the observation that caregivers often feel like they have to keep fighting on behalf of their loved one. If […]

Filed Under: end of life Tagged With: caregivers, end of life

Engage With Grace

November 26, 2008 By Susannah Fox 6 Comments

The following post was written by Alexandra Drane and the Engage With Grace Team. Here’s an image of the slide, and below is the post that many are sharing today. (The original PowerPoint slide is linked within the post.) Please see comments at end.

Filed Under: e-pts resources Tagged With: end of life, Engage with Grace

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Recent Comments

  • Kevin Lawrence on Caregiver starter pack: “We recently read The End-of-Life Handbook in our book club on Smart Patients. It’s aimed at caregivers rather than patients…” Feb 2, 09:41
  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58

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