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Susannah Fox

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Seekers

Wow! How? Psychedelic Outlaws

June 27, 2025 By Susannah Fox Leave a Comment

Part of the Psychedelic Outlaws book cover. Glass dishes containing tablets, mushrooms, and capsules.

Imagine the nerves behind one of your eyes suddenly bursting into flames of pain, relentlessly burning for hours. The pain recedes, then roars back, day after day. You try to describe what is happening inside your head to your family, your clinicians, even yourself, but words fall short. It is the worst pain a human […]

Filed Under: Champions, Networkers, patient networks, peer-to-peer health care, Seekers, Solvers Tagged With: Clusterbusters, David Fajgenbaum, Global Genes, Joanna Kempner, Patient-Led Research Collaborative, psychedelics, Rebel Health

Wow! How? Cancer Treatment Innovation

May 30, 2025 By Susannah Fox Leave a Comment

A pipette hovers above a dozen test tubes

This post is the latest in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform.  When Michael Katz was diagnosed with multiple myeloma, he was fortunate to connect with someone who had recently completed treatment, the “just-in-time someone-like-me” that could guide him. He vowed to do the […]

Filed Under: Champions, Networkers, Seekers Tagged With: ACOR, cancer, Clinical Trials, International Myeloma Foundation, Mayo Clinic, Michael Katz, multiple myeloma, Rebel Health, Vincent Rajkumar, Wow! How? Health

Jean Nidetch, Rebel Health leader

May 9, 2025 By Susannah Fox 2 Comments

A blonde woman in a black shirt looks to her left.

Jean Nidetch and six friends decided to try to lose weight together, meeting at her home to encourage and support each other in their quest. Their success drew more friends and in May, 1963, Nidetch launched a company based on the idea that peer support is key to weight control. Over 400 people showed up […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: Jean Nidetch, Rebel Health, Weight Watchers, Wow! How? Health

Rare Disease in the NYT

April 23, 2025 By Susannah Fox 5 Comments

Ultrasound of a baby

My phone started blowing up with texts from friends and family members yesterday morning, alerting me to a New York Times magazine cover story by Amanda Hess, “My Son Has a Rare Syndrome. So I Turned to the Internet” (gift link). Hess writes beautifully about her experience being dropped into the medical maze and her […]

Filed Under: Networkers, peer-to-peer health care, Seekers Tagged With: Amanda Hess, New York Times, Rare Disease

Hack needed: Peer connection

April 18, 2025 By Susannah Fox Leave a Comment

Close up picture of a dandelion

This post is the latest in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform. It starts with a story that long-time readers of this blog will hopefully recognize! Ten years ago this week my friend Delina texted me: I am sweeping the kitchen and just found […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: Allie Signorelli, Delina Pryce McPhaull, Instagram, Katie Couric, Parkinson's, Rebel Health, Wow! How? Health

Wow! How? “Breaking Brad”

March 6, 2025 By Susannah Fox 2 Comments

A pipette hovers above a dozen test tubes

The latest in my series of stories that hopefully make you say, “Wow! How did they come up with that?” Bradley Burnam loved his job as a medical device sales rep because, as he puts it, he got to play doctor: wear scrubs, visit hospitals, and work with patients. But during one site visit he […]

Filed Under: Champions, Seekers, Solvers Tagged With: Bradley Burnam, Fda, infection control, Rebel Health, Turn Therapeutics, wound care, Wow! How? Health

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Recent Comments

  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
  • Jill H. on Case study: Trevor’s disease: “Hello Carrie, I am curious how your son is doing after the surgery? Were you able to fix the locked…” May 28, 19:07
  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10

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