Internet Geologist LLC, Washington, DC
January 2017 – present
Provide strategic advice related to research, health data, technology, and innovation. Target areas of the health care system that need to work better for patients and caregivers. Current clients include: Alladapt, Archangels, Article 27, Before Brands, California Health Care Foundation, Ciitizen, Common Sense Media, Equip Health, FasterCures, Hopelab, IBM, and the Light Collective. Past clients: AARP, National Cancer Institute, Well Being Trust, Hope for Henry, PatientsLikeMe.
January 2019 – September 2020
Guided an active, healthy octogenarian cousin as he navigated the health care system. When terminal illness struck, we worked together to design and build a home hospice that kept his care team safe during the pandemic and honored his wishes for a peaceful death.
June – December 2017
Provided direct care for my father as he underwent immunotherapy treatment for melanoma. Helped manage a dizzying and ever-changing array of medications. Became skilled at guiding physical therapy exercises and, eventually, supporting activities of daily living. Learned to navigate end of life conversations with family members, clergy, and clinicians.
Chief Technology Officer
U.S. Department of Health & Human Services (HHS), Washington, DC
May 2015 – January 2017
- Led an innovation lab that created opportunities for entrepreneurship and impact across the Department’s 27 divisions and 80,000+ employees, including the following programs:
- Ignite Accelerator: Provides HHS staff a startup environment to test new ideas.
- Ventures Fund: Invests in and supports bold ideas to transform Departmental operations.
- Entrepreneurs-in-Residence Program: Recruits outside talent to solve complex problems in health and the delivery of human services.
- Innovators-in-Residence Program: Partners with private, non-profit organizations to explore areas of mutual interest.
- Buyers Club: Modernizing information technology acquisition.
- Health Data Initiative: Liberating health and social service data to serve the public.
- Competes: Leverages incentive prize competitions to source external solutions.
- Harnessed the power of data, technology, and innovation to improve the health and welfare of the nation. Worked with leaders and frontline staff across the Department to improve operations. Translated market reality of rapid technological change into actionable opportunities and threat mitigation strategies. Represented the U.S. in domestic and international meetings, including bilateral health data discussions with foreign governments.
- Conceived of and launched the Invent Health initiative focused on user-driven innovation of medical and assistive devices.
Entrepreneur in Residence
Robert Wood Johnson Foundation, Princeton, NJ
September 2014 – May 2015
Catalyzed new thinking and identified opportunities for the nation’s largest philanthropy dedicated solely to health. Assessed employees’ tolerance and appetite for risk and failure. Contributed to the improvement of the Pioneer Fund application process in order to attract more out-of-the-box thinkers and unexpected ideas. Built project teams to bring patient and caregiver insights into the Foundation’s work. Represented the Foundation at national- and local-level meetings on public health, technology, and data.
Associate Director, Internet Project
Pew Research Center, Washington, DC
April 2000 – July 2014
- Helped create and define a new market at the intersection of health, social media, and patient engagement.
- Set the industry standard for research about the social impact of the internet on health. Author of 50+ reports about a wide range of topics. Cited in publications ranging from Pediatrics and the Journal of the American Medical Association to the New York Times and the Wall Street Journal, as well as countless business plans and grant proposals.
- Strategic advisor to a diverse group of health care stakeholders: entrepreneurs, grant makers, patient groups, clinicians, federal health agencies, and the White House.
- Pioneered online fieldwork and participatory research methods at the Center, with a particular focus on understanding how people with rare and chronic conditions use the internet.
- Directed the Project’s digital strategy. Oversaw pewinternet.org and all social media channels.
- Recognized as a trend spotter and thought leader. Named #3 of the Top 50 Voices in Biotech on Twitter by FierceBioTech and #2 of CNN’s 5 recommended Twitter feeds for health. Popular keynote speaker at health and technology events in both the U.S. and in Europe.
- Incited and engaged in the public conversation about health and technology on Twitter and at pewresearch.org, e-patients.net, and susannahfox.com.
U.S. News & World Report, Washington, DC
January 1995 – March 2000
Envisioned and implemented strategy for all of the magazine’s interactive projects. Oversaw all technical, design, and editorial aspects of the website as the site grew from hundreds of users to millions. Recruited and managed programmers, designers, editors, and producers. Hired in 1995 to help launch USNews.com, promoted to managing editor of the site in 1998, then top editor in 1999.
RealNetworks, Washington, DC
January 1994 – December 1994
Lead researcher for the start-up of a multimedia company. Contributed to development of content programming for RealAudio software. Tracked the growth of the early online population.
The Harwood Institute, Bethesda, MD
August 1992 – December 1993
Researched public policy issues for a political consulting firm. Coordinated national hearings for Project Democracy, with a focus on increasing voter participation and political action.
Wesleyan University, Middletown, CT
Bachelor of Arts, 1992
Smith College, Northampton, MA, 1988-89
Coursework in French literature and Anthropology
Member, Board of Directors, Cambia Health Solutions.
Member, Board of Directors, Hive Networks.
ADVISORY COMMITTEE MEMBERSHIPS
Member, Advisory Committee, Lemelson Center for the Study of Invention and Innovation at the Smithsonian Institution.
Member, Advisory Board, Atlas of Caregiving.
Member, Founder’s Circle, Society for Participatory Medicine.
Former member, Awards Committee, Prix Galien USA.
Former member, Council of Medical Specialty Societies‘ COVID-19 Registry Webinar Advisory Committee.
Former member, KidneyX: Patient Innovator Challenge Judge Committee.
Former member, Advisory Board, Boston Children’s Hospital SMART Platforms project.
Former member, Advisory Board, Robert Wood Johnson Foundation’s Flip the Clinic initiative.
Former member, Advisory Board, Stanford University’s Medicine X Symposium.
Former member, Advisory Committee, Robert Wood Johnson Foundation’s Project HealthDesign.
Former member, Advisory Board, Webicina.
AWARDS AND HONORS
2019 recipient of the Doc Tom e-Patient Principles Award.
Named among the “Top 19 Health Technology Influencers to Follow” by Solved magazine in 2019.
California HealthCare Foundation: $300,000+ over six years to study the impact of the internet on health and health care in the U.S., combining quantitative and qualitative methods. (2012, 2010, 2008)
Fox, Susannah (2020) “How Chronic-Disease Patients Are Innovating Together Online.” Harvard Business Review. April 9, 2020.
Fox, Susannah; Sarasohn-Kahn, Jane; Suennen, Lisa (2019) “A Matter of Trust, Perception, Risk, and Uncertainty.” Tincture. July 2019.
Fox, Susannah (2018) “How Healthcare Leaders Can Fuel Care for the Next Generation.” HealthTech. September 2018.
Rideout, Victoria; Fox, Susannah (2018) “Digital Health Practices, Social Media Use, and Mental Well-Being Among Teens and Young Adults in the U.S.” Hopelab and Well Being Trust. July 2018.
Fox, Susannah (2017) “When it comes to health, your community may be superpower.” Tincture. December 2017.
Fox, Susannah (2017) “Re-imagining care for hospitalized kids.” Medium. November 2017.
Fox, Susannah (2017) “Innovation as a Problem Solving Tool in Government.” Medium. January 2017.
Fox, Susannah. (2016) “Invent Health: A jolt of inspiration for health care.” Medium. September 2016.
Fox, Susannah. (2016) “HHS Innovation Day: Innovation is a Force for Good.” Medium. July 2016.
Fox, Susannah (2016) “Invent Health: The National Week of Making.” Medium. July 2016.
Fox, Susannah (2016) “Invent Health: Finding Common Ground.” Medium. April 2016.
Fox, Susannah (2016) “Open Data-Driven Tools for Customers.” Medium. January 2016.
Fox, Susannah (2015) “Stay Close to Your Customer.” Medium. December 2015.
Fox, Susannah (2015) “Why It’s Time for the Government to be Part of the Public Conversation About Health and Health Care.” Medium. August 2015.
Fox, Susannah (2015) “The Future of Aging and Technology.” Medium. July 2015.
Fox, Susannah (2015) “Promoting Employee-Powered Solutions at HHS.” Medium. July 2015.
Fox, Susannah; Rainie, Lee. (2014) “The Web at 25 in the U.S.” Pew Research Center. February 2014.
Fox, Susannah. (2014) “The Social Life of Health Information.” Pew Research Center. January 2014.
Fox, Susannah; Duggan, Maeve. (2013) “The Diagnosis Difference.” Pew Research Center. November 2013.
Fox, Susannah; Duggan, Maeve; Purcell, Kristen. (2013) “Family Caregivers are Wired for Health.” Pew Research Center. June 20, 2013.
Fox, Susannah. (2013) “After Dr. Google: Peer-to-Peer Health Care.” Journal of the American Academy of Pediatrics (Vol. 131 No. Supplement 4 June 1, 2013; pp. S224 -S225).
Fox, Susannah; Duggan, Maeve. (2013) “Tracking for Health.” Pew Research Center. January 28, 2013.
Fox, Susannah; Duggan, Maeve. (2013) “Health Online 2013.” Pew Research Center. January 15, 2013.
Fox, Susannah; Duggan, Maeve. (2012) “Mobile Health 2012.” Pew Research Center. November 8, 2012.
Fox, Susannah; Brenner, Joanna. (2012) “Family Caregivers Online.” Pew Research Center. July 12, 2012.
Jain, Sachin H.; Goyal, Riya; Fox, Susannah; and Shrank, William H. (2012) “Bowling Alone, Healing Together: The Role of Social Capital in Delivery Reform.” The American Journal of Managed Care: Volume 18, Number 6. June 2012.
Fox, Susannah. (2011) “The Social Life of Health Information, 2011.” Pew Research Center. May 12, 2011.
Fox, Susannah. (2011) “Peer-to-peer Healthcare.” Pew Research Center. February 28, 2011.
“Social Media as a Platform for Hope,” presented at the annual conference of the Mayo Clinic Social Media Network in Jacksonville, FL. November 15, 2018.
“Share, Connect, Engage,” presented at the National Cancer Institute in Bethesda, MD. June 7, 2018.
“Building an Innovation Nation,” presented at the 8th annual GoldLab Symposium in Boulder, CO. May 20, 2017.
“Invent Health,” presented at the Centers for Disease Control and Prevention’s first Maker Faire in Atlanta, GA. November 10, 2016.
“Creating Space for Innovation at HHS,” presented at Stanford Medicine X in Palo Alto, CA. September 16, 2016.
“Invent Health: Building an Innovation Nation,” presented at HxRefactored in Boston, MA. April 5, 2016.
“At the Crossroads of Health, Technology, and Service,” presented at a meeting of the National Library of Medicine Board of Regents in Bethesda, MD. February 9, 2016.
“Optimizing Digital to Reach Patients, Scientists, Clinicians, and the Public,” presented at the National Institutes of Health’s Digital Summit 2015 in Bethesda, MD. October 19, 2015.
“Opening the Spigots of Health Data in the U.S. and UK,” presented at the Health Care Innovation Expo in Manchester, England. September 3, 2015.
“The Social Life of Health Information,” presented at Johnson & Johnson’s Chief Medical Officer Annual Leadership Meeting in New Brunswick, NJ. February 10, 2015.
“Making Health Care Better,” presented at America’s Health Insurance Plans Ops/Tech Forum in Phoenix, AZ. November 19, 2014.
“World-Class Health Care, Driven by Patient Power,” presented at Almedalen on the island of Gotland, Sweden. July 1, 2014.
“Secret Questions, Naked Truths,” presented at the Quantified Self Public Health Symposium, San Diego, CA. April 3, 2014.
“Participatory Research,” presented at Stanford University School of Medicine, Palo Alto, CA. February 6, 2014.
“The Intersection of Health Care, Social Media, and Digital Strategy,” presented at the annual meeting of Families USA, Washington, DC. January 25, 2014.
“Sharing Data and Decisions for Health,” presented at the Institute of Medicine, Washington, DC. December 6, 2013.
“Mobile Health in Context,” presented at the University of Maryland, Baltimore, MD. October 22, 2013.
“The Who, What, Where, When & Why of Health Care Social Media,” presented at the Albert Einstein College of Medicine at Yeshiva University in New York, NY. October 18, 2013.
“Help the Helpers,” presented at Health 2.0 in Santa Clara, CA. October 1, 2013.
“Data Collection and Connection,” presented at Health 2.0 in Santa Clara, CA. September 30, 2013.
“Health in the Digital Age,” presented at Salud 2.0 Euskadi in Bilbao, Spain. July 8, 2013.
“The Self-Tracking Data Explosion,” presented at the Health Datapalooza in Washington, DC. June 4, 2013.
“One Voice, Many Inflections,” presented at the National Institutes of Health’s HIV/AIDS Clinical Trials Networks Communications Symposium in Washington, DC. May 9, 2013.
“The Mobile, Social Present (and What It Means for the Future),” presented to the National Library of Medicine’s HIV/AIDS Community Information Outreach Program, Bethesda, MD. December 10, 2012.
“The ‘E’ is for Engagement,” presented to the 2012 Connected Health Symposium, Boston, MA. October 25, 2012.
“What’s the Future for Self-tracking?” presented to Stanford University’s Medicine X Symposium, Palo Alto, CA. September 28, 2012.
(Additional publications and lectures available upon request.)