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Susannah Fox

I help people navigate health and technology.

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    • How Young People Use Digital Media to Manage Their Health
    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
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Writing

Networkers pool resources

May 23, 2022 By Susannah Fox 11 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

“You are not alone.” People who are newly diagnosed or facing a health challenge long to hear those words. Connection is an antidote to suffering and confusion. When they are able to tap into peer-to-peer networks of patients and caregivers, Networkers learn in community about their condition, shrug off the burdens of isolation and shame, then urge […]

Filed Under: key people, peer-to-peer health care Tagged With: MIT Press, peer-to-peer healthcare

Seekers go out on the hunt

May 19, 2022 By Susannah Fox 2 Comments

As I’ve shared in previous posts, I’m writing a book for MIT Press about the key role that peer health advice plays at every level of our health care system. The people I’m describing in my book do not wait to be invited to create opportunities for positive change. They seize opportunities to take action. They reject […]

Filed Under: key people Tagged With: MIT Press, peer-to-peer healthcare

Too legit to quit

April 18, 2022 By Susannah Fox 13 Comments

Sunflowers with a bee

Sara Riggare, PhD, an expert in patient-led research and personal science, tweeted this animated GIF depicting the common process in starting personal science, which is based on Anne Wright’s work: Andrea Downing was among those who replied, writing: “My feedback: We’ve been saying for years what you outline here. The question is: how do we […]

Filed Under: health data, key people, peer-to-peer health care, research issues Tagged With: Andrea Downing, Anne Wright, Dana Lewis, Gary Wolf, Long Covid, personal science, Quantified Self, Sara Riggare, Unrest

Caregiving is not a “career break”

April 13, 2022 By Susannah Fox 35 Comments

Red leaves with water droplets

LinkedIn recently announced a new feature: the “career break.” Users can choose from 13 different types of time away from paid work, such as bereavement, career transition, caregiving, full-time parenting, a gap year, or travel.  It is a big step forward. But I want more. I want caregivers to be recognized as essential members of a health […]

Filed Under: positive patterns, trends & principles Tagged With: Alexandra Drane, ARCHANGELS, caregivers, Jeff Weiner, LinkedIn, Sarah Stephens Winnay, Tim O'Reilly

Designing Peer-to-peer Health

February 10, 2022 By Susannah Fox Leave a Comment

Susannah Fox Ep 59 Design Lab with Bon Ku

“How can peer to peer connection make a healthier society? Can Amazon reviews give us fresh insight into our health? Why do on-line patient communities represent an incredible untapped resource in healthcare? How can a co-designed death give us a fuller life?” Bon Ku and I explore these questions and more in Episode 59 of […]

Filed Under: end of life, peer-to-peer health care Tagged With: Alexandra Drane, BJ Miller, Bon Ku, Engage with Grace, Jodi Ferrier, John Costik, Laurie Strongin, Nightscout, podcast, Sara Riggare, Sarah Stephens Winnay, Yoko Sen

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Recent Comments

  • Kevin Lawrence on Networkers pool resources: “Thank you, Casey! I know Charlie second-hand, through Gilles but we’ve never connected. I’ll reach out!” May 26, 09:56
  • Mighty Casey on Networkers pool resources: “Wow, Kevin, you’re juggling a lot! Glad you’ve found some resources/connections, would definitely say that #btsm is a good source…” May 26, 09:31
  • Susannah Fox on Networkers pool resources: “Kevin, I’m at a loss for words at the depth of the insights and poignancy you shared here. Let’s begin…” May 26, 08:32

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Topics

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  • Demographics
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  • Participatory Research
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popular posts

  • Seekers go out on the hunt
  • "A jumbo jet a day" - who said it?
  • Hack needed: Tiny pills, trembling hands
  • Hacking home health care

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