My former colleagues at the Pew Research Center continue to publish the best research on the impact of the internet on American society, bar none. My fandom extends to creating a fact sheet summarizing their recent surveys about Americans’ data worries. The results are indications about what people think and feel about the shifting technology […]
Writing
Credible, useful, helpful, trustworthy
Inspired by a conversation with my FasterCures colleagues, I began looking into survey data related to trust and credibility, particularly: What entities and resources do people turn to when they need advice about important topics? Edelman, a global communications firm, has been measuring trust and credibility for 20 years. Their most recent Trust Barometer asked […]
How connection can lead to change
In April, Harvard Business Review published my article, “How Chronic-Disease Patients Are Innovating Together Online.” Since then I’ve been collecting other stories about people gathering online to solve their own problems — an innovation pipeline powered by what I call peer-to-peer health care. Fortunately and unfortunately, there are many examples. People living with long-term effects […]
Lessons learned about hospice care
A loved one recently went over the cancer waterfall and I dove in after him, keeping his head above water long enough to say goodbye to everyone. It was an intense four weeks of caregiving – two in the hospital and two at home, in hospice. I am sharing one segment of our story to […]
Elegy for A. and M.
I grew up rich in cousins. I spent holidays with my first cousins and lived, starting at age 11, in the same town with second cousins (the children of my mother’s first cousin) AND a first cousin twice removed (my grandmother’s first cousin – each generation that separates us is the “removed” part). Don’t worry, […]
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