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Susannah Fox

I help people navigate health and technology.

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    • How Young People Use Digital Media to Manage Their Health
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Writing

Engage with Grace

November 23, 2022 By Susannah Fox 9 Comments

5 questions about end-of-life choices

Can you and your loved ones answer these questions? 1. On a scale of 1 to 5, where do you fall on this continuum: 1 = Let me die without medical intervention; 5 = Don’t give up on me no matter what, try any proven and unproven intervention possible. 2. If there were a choice, […]

Filed Under: end of life, shared decision making Tagged With: caregivers, Engage with Grace, family

Patient-led innovation

November 7, 2022 By Susannah Fox 28 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

I am curating a list of organizations that are putting patient-led innovation to work. What follows is an incomplete list — please help me by sharing YOUR favorite peer-to-peer communities in the comments below. Extra credit if you can share how they have had an impact on the public conversation, treatment of a condition, device […]

Filed Under: patient networks, peer-to-peer health care Tagged With: MIT Press, peer-to-peer healthcare

Champions fast-track innovations

June 13, 2022 By Susannah Fox 9 Comments

Rocket launches into a blue sky

Champions help take a scrappy patient-led idea to scale. They give Seekers, Networkers, and Solvers access to resources held by mainstream institutions such as funding, media attention, regulatory guidance, or access to labs and manufacturing facilities. Champions fast-track innovations. This is the fourth post in a series that I’m writing to introduce the archetypes of […]

Filed Under: key people Tagged With: MIT Press, peer-to-peer healthcare

Solvers attack problems

May 31, 2022 By Susannah Fox 6 Comments

Axes, pliers, hammers hung on a wooden wall

Solvers identify challenges, then test and develop new concepts, code, and inventions to meet their needs. They work on a problem with a singular focus because their life – or the life of a loved one – often depends on their ability to find or invent a solution. Some Solvers openly share their designs online for […]

Filed Under: key people, peer-to-peer health care Tagged With: Invent Health, maker movement, MIT Press, peer-to-peer healthcare

Networkers pool resources

May 23, 2022 By Susannah Fox 11 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

“You are not alone.” People who are newly diagnosed or facing a health challenge long to hear those words. Connection is an antidote to suffering and confusion. When they are able to tap into peer-to-peer networks of patients and caregivers, Networkers learn in community about their condition, shrug off the burdens of isolation and shame, then urge […]

Filed Under: key people, peer-to-peer health care Tagged With: MIT Press, peer-to-peer healthcare

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Recent Comments

  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38
  • Rajiv Mehta on Caregiver starter pack: “I know how important it is that the initial help is measured and focused — enough to be helpful immediately,…” Jan 31, 11:34
  • Susannah Fox on Caregiver starter pack: “Yes! Creating a habit of taking breaks, or putting on your own oxygen mask, is key. I realized that the…” Jan 31, 08:46

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  • Beauty and Wonder
  • Demographics
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popular posts

  • Caregiver starter pack
  • Hack needed: Tiny pills, trembling hands
  • Engage with Grace
  • A taxonomy of health data

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