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Susannah Fox

I help people navigate health and technology.

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peer-to-peer healthcare

LongCovid’s citizen scientists

February 1, 2021 By Susannah Fox 9 Comments

Flock of black birds flying together in a blue sky

Amy Dockser Marcus writes with the sensitivity and precision of a scientist, which is why I was thrilled that she recently turned her attention to the patient-led research being conducted by people with LongCovid, which affects an estimated 10-20% of COVID-19 patients. The Wall Street Journal‘s pay wall may prevent you from reading the full […]

Filed Under: participatory research, peer-to-peer health care, research issues, social media Tagged With: Amy Marcus, Emily Sirotich, Eric Topol, Gina Assaf, Helen Burstin, LongCovid, peer-to-peer healthcare, Wall Street Journal

Crazy, crazy, LongCovid, obvious

January 25, 2021 By Susannah Fox 15 Comments

Flock of geese flying in one direction together

LongCovid is an extraordinary challenge to the human body. It’s been met with an extraordinary response from the human spirit. As I wrote in a previous post, we are watching patients, caregivers, clinicians, researchers, and policymakers move through the stages of peer-to-peer health innovation at a fast clip. Faster than I’ve ever seen in my […]

Filed Under: patient networks, peer-to-peer health care, pts as teachers Tagged With: Body Politic, Kevin Kelly, LongCovid, NIH, peer-to-peer healthcare

Case study: Breast cancer

December 7, 2020 By Susannah Fox 16 Comments

Sunflower in a field of other sunflowers

When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us.  That is the case with my friend Meagan. She was recently diagnosed with breast cancer. She […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: breast cancer, case study, peer-to-peer healthcare, sunflowers

Lessons learned about hospice care

October 19, 2020 By Susannah Fox 36 Comments

Thick trunk reaches up to the sky, sunlight filters through leaves

A loved one recently went over the cancer waterfall and I dove in after him, keeping his head above water long enough to say goodbye to everyone. It was an intense four weeks of caregiving – two in the hospital and two at home, in hospice.  I am sharing one segment of our story to […]

Filed Under: e-patient stories, end of life Tagged With: caregivers, family, hospice, Medicare, peer-to-peer healthcare, Renee Berry

Pandemic problem-solving

April 29, 2020 By Susannah Fox 9 Comments

Hands feed fabric into a sewing machine

The COVID19 pandemic is forcing everyone to learn new skills on the fly.  Clinicians are teaching each other how to hotwire a ventilator to serve more than one patient.  People are 3D printing spare parts for medical equipment and learning how to sew protective masks. Parents are sharing strategies for convincing their teenagers to stay home – and […]

Filed Under: peer-to-peer health care Tagged With: COVID19, maker movement, peer-to-peer healthcare

Public Q&A: Peer support for parents of teens with cancer

February 24, 2020 By Susannah Fox 9 Comments

Peer to peer health advice: your community may really be your superpower

Helen Burstin, MD, reached out to ask if I know of an online peer-to-peer support group for parents of teens with cancer. For anyone who knows Helen: Don’t worry, it’s not for her own family. She is asking on behalf of a friend, who writes: “I’ve been able to find groups for parents of children […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: cancer, caregivers, family, parents, peer-to-peer healthcare, teens

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popular posts

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