It seems like forever-ago that I delivered this keynote at Stanford Medicine X. Innovators are facing even more significant challenges than I could have imagined back in September 2016. And yet I still believe we live in a time of abundant opportunity to connect with people who want to work toward a participatory, innovative future […]
Image above: Megan Smith, Obama White House Chief Technology Officer; Steven Keating, holding replicas of his brain tumor; and John P. Holdren, Director of the Obama White House Office of Science and Technology Policy; on the day the Precision Medicine Initiative was announced. I’m honoring the contributions of my community colleagues over the years by […]
At no other time in history have we been able to communicate across the world, in an instant, with anyone and everyone who has knowledge and experience to share. Never has it been so easy to solve problems together. When it comes to your health, your community may be your superpower.
We have a “last mile” problem in patient communities. In the first post of this series, I asked for general advice about finding your people — the peers who could give you advice about your health condition and answer even your most secret questions. Now I’d like to focus on how someone would approach getting […]
The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]
How might we empower people to participate in research about their own diseases or conditions? Which models work best for organizations solving medical mysteries or improving care for those living with rare conditions? These are two of the questions raised by a New York Times story today: “His doctors were stumped. Then he took over,” by Katie Thomas […]