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Susannah Fox

I help people navigate health and technology.

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Bon Ku

What if your clinician gave you a prescription to check out a patient group that they knew to be good?

February 12, 2020 By Susannah Fox 44 Comments

Post-it notes fill one section of a diagram

Amy Gleason (@ThePatientsSide) captured this line of mine, delivered on a panel at the Health Datapalooza yesterday. Her tweet generated an interesting cascade of reactions ranging from: “This is potentially dangerous” to “This is obvious (and old news).” I thought I’d expand on my observations and see if people want to expand on theirs in […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: ACOR, Bon Ku, Danny Sands, David Fajgenbaum, E-Patient Dave, Health Datapalooza, peer-to-peer healthcare

Chasing cures

September 10, 2019 By Susannah Fox 7 Comments

CHASING MY CURE book cover

Years ago, I met a mom of a child with a rare disease who matter-of-factly shared her story, which included as many twists and close calls as any blockbuster summer movie. I marveled at her heroism and she said no, she rejects that description. “I’m not a hero,” she insisted. “I’m a typical mom. You […]

Filed Under: e-patient stories, key people, positive patterns Tagged With: Abby Norman, Afternoon Napper, Bon Ku, Dana Lewis, David Fajgenbaum, Doug Lindsay, Rare Disease, rare diseases, Sharon Terry, Terry Jo Bichell

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popular posts

  • Sunflowers turn to each other for help
  • Hack needed: Tiny pills, trembling hands
  • Hypothesis generator
  • Project management for caregivers

Recent Comments

  • Susannah Fox on From stunt to solution: “Thanks, Lisa! I love that perspective.” Mar 1, 15:40
  • Lisa Suennen on From stunt to solution: “Hey S- it strikes me that this one has become partially true “What if science & medicine became like the…” Mar 1, 10:33
  • Dave deBronkart on Standing ovation… then crickets: “Ohhh, I had no recollection of that (and I’ve never heard of the Little Prince problem). Here’s a photo of…” Feb 25, 11:39

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