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Susannah Fox

I help people navigate health and technology.

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E-Patient Dave

What if your clinician gave you a prescription to check out a patient group that they knew to be good?

February 12, 2020 By Susannah Fox 44 Comments

Post-it notes fill one section of a diagram

Amy Gleason (@ThePatientsSide) captured this line of mine, delivered on a panel at the Health Datapalooza yesterday. Her tweet generated an interesting cascade of reactions ranging from: “This is potentially dangerous” to “This is obvious (and old news).” I thought I’d expand on my observations and see if people want to expand on theirs in […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: ACOR, Bon Ku, Danny Sands, David Fajgenbaum, E-Patient Dave, Health Datapalooza, peer-to-peer healthcare

Why I (finally) signed up for health data access

January 17, 2020 By Susannah Fox 8 Comments

Peas and pods on cutting board

Christine Bechtel, Lygeia Ricciardi, Dave deBronkart, Casey Quinlan, and Donna Cryer published an article in Health Affairs this week: “Why Aren’t More Patients Electronically Accessing Their Medical Records (Yet)?” Please click through and read it — it’s open access.  Being a health geek, I read footnotes and every link in this article is worth your time. Bechtel […]

Filed Under: health data, medical records, peer-to-peer health care Tagged With: Casey Quinlan, Christine Bechtel, Courtney Lyles, Donna Cryer, E-Patient Dave, food allergy, Health Affairs, Julia Adler-Milstein, Lygeia Ricciardi, Sunny Lin, Urmimala Sarkar

How did you find your people?

April 17, 2017 By Susannah Fox 33 Comments

The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]

Filed Under: peer-to-peer health care Tagged With: ACOR, ALS, cancer, cystic fibrosis, Danny Sands, E-Patient Dave, Emily Kramer-Golinkoff, patientslikeme, peer-to-peer healthcare, Smart Patients

The Value of Data

April 15, 2015 By Susannah Fox 9 Comments

Patient Records by ken fager on flickr

Health care is in danger of missing the point. (A repost from 2014 that’s relevant today thanks to announcements at HIMSS.) In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at U.S.News saw an opportunity […]

Filed Under: hc's problem list, health data, medical records, trends & principles Tagged With: big data, E-Patient Dave, Health Data, Health Data Rights, Health Datapalooza, John Halamka, Paul Levy, SMARTHealthIT

Recognizing the value of data

May 30, 2014 By Susannah Fox 42 Comments

In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at USNews saw an opportunity to cash in. They proposed slicing out the most marketable piece of the website — the education franchise — and selling […]

Filed Under: hc's problem list, medical records, trends & principles Tagged With: big data, cdc, E-Patient Dave, Epic, Health Datapalooza, John Halamka, John Moore, Paul Levy, Robert Wood Johnson Foundation, SMARTHealthIT, USNews, VentureBeat

Thinking, fast and slow, about health care

December 3, 2013 By Susannah Fox 14 Comments

Daniel Kahneman’s book, Thinking, Fast and Slow, has been sitting on my shelf for a year. I have started reading it three times and just can’t get into it. John Lumpkin to the rescue! His engaging 15-minute talk places Kahneman’s essential points in the context of his experience as a clinician and as an observer […]

Filed Under: key people Tagged With: Amy Abernethy, Daniel Kahneman, E-Patient Dave, Francisco Grajales, John Lumpkin, Sally Okun

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