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Susannah Fox

I help people navigate health and technology.

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medical records

Leveraging data-driven patient participation to accelerate medical research

May 18, 2020 By Susannah Fox 9 Comments

A person holds a sign "I did not get the memo that this was impossible" as 1s and 0s race beneath him

Here’s a lesson I learn over and over again: Never assume knowledge. Don’t waste your time making a point if you are not sure your audience understands the context for it. Or, as the wise Andy Kohut used to say, “If they don’t get the premise, they won’t get the joke.” Last year I spoke […]

Filed Under: health data, medical records, research issues Tagged With: All of Us, Andy Kohut, Christine Bechtel, FasterCures, Milken Institute, patientslikeme, Rachel Tunis, Regina Holliday, Tidepool, Todd Park, War on Cancer

Why I (finally) signed up for health data access

January 17, 2020 By Susannah Fox 8 Comments

Peas and pods on cutting board

Christine Bechtel, Lygeia Ricciardi, Dave deBronkart, Casey Quinlan, and Donna Cryer published an article in Health Affairs this week: “Why Aren’t More Patients Electronically Accessing Their Medical Records (Yet)?” Please click through and read it — it’s open access.  Being a health geek, I read footnotes and every link in this article is worth your time. Bechtel […]

Filed Under: health data, medical records, peer-to-peer health care Tagged With: Casey Quinlan, Christine Bechtel, Courtney Lyles, Donna Cryer, E-Patient Dave, food allergy, Health Affairs, Julia Adler-Milstein, Lygeia Ricciardi, Sunny Lin, Urmimala Sarkar

Health Datapalooza X

March 25, 2019 By Susannah Fox Leave a Comment

Lit candles in the shape of the number 10 on top of a pink frosted cupcake

This week is the 10th anniversary Health Datapalooza. It’s a milestone worth celebrating. In 2010, I attended what was then called the Community Health Data Forum at the Institute of Medicine. I posted a preview: Making Health Data Sing (Even If It’s a Familiar Song) and below are my notes from what we knew even […]

Filed Under: health data, key people, medical records, policy issues Tagged With: Alain Rappaport, Alex Fishman, Alex Howard, Alexandra Carmichael, Andrew Wilson, David Hale, Health Data, Health Datapalooza, Kristi Miller Durazo, Palantir, Regina Holliday, Roni Zeiger, Tim O'Reilly, Todd Park

The P stands for portability

January 18, 2019 By Susannah Fox Leave a Comment

Image of a sound board with the words "a16z podcast"

One of my core beliefs is that we need to open up access to the data, information, and tools people need to solve their own problems in health care — or at least give people the chance to direct their data to experts who can help them. I recently had the chance to be part […]

Filed Under: hc's problem list, health data, key people, medical records, policy issues Tagged With: Andreessen Horowitz, Anil Sethi, Ciitizen, Hipaa, podcasts, Sonal Chokshi, Vijay Pande

Data as an engine of disruption in health care

October 22, 2018 By Susannah Fox 32 Comments

Medical records closes at 5pm on Friday by Regina Holliday

Continuing my practice of “flipping” an event — posting what I hope to get across in advance in order to jump start the conversation — here is a preview for a panel set to take place on Oct. 23. My co-panelists (Iya Khalil, Deborah Kilpatrick, and Don Rucker) and I will talk about data as an engine […]

Filed Under: health data, medical records, policy issues Tagged With: Anil Sethi, Blue Button, Deborah Kilpatrick, Deven McGraw, Don Rucker, EHR, electronic medical record, FasterCures, flip teaching, Harlan Krumholz, Hugo Campos, Iya Khalil, Lisa Bari, Lucia Savage, Milken Institute, Open Notes

Blue Button’s North Star

August 23, 2018 By Susannah Fox Leave a Comment

Red Stop sign with stickers, so it reads: DON'T STOP BELIEVING

Blue Button is a Trojan horse for culture change in the American health care system. It places power in the hands of patients and whets the data appetites of millions of Americans and the companies who would like to serve them. If you’ve never heard of Blue Button, here’s a quick overview: The federal government […]

Filed Under: health data, medical records, policy issues, positive patterns Tagged With: Blue Button, FHIR, Hhs, Mark Scrimshire, Markle Foundation, Medicare, VA, veterans, White House

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