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Susannah Fox

I help people navigate health and technology.

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    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Fact sheet: differences between LGBTQ and straight youth in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
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flip teaching

Advancing clinical registries to support pandemic treatment and response

July 27, 2020 By Susannah Fox 23 Comments

Close up of fuzzy dandelion seeds

The biomedical research model has a blind spot. People living with a condition or disease are traditionally seen as passive sources of data, not active participants in the research. We as a society miss out on promising avenues of inquiry. It’s time to widen our lens. On August 12, I’ll moderate a discussion about how […]

Filed Under: health data, peer-to-peer health care Tagged With: Body Politic, British Medical Journal, Council of Medical Specialty Societies, COVID19, Emily Sirotich, flip teaching, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, LongCovid, patient registries, Quantified Self, rheumatoid arthritis

Chasing cures

February 3, 2020 By Susannah Fox 9 Comments

Decorative: blue gossamer

Bon Ku, MD, a regular on the TV show “Chasing the Cure,” and David Fajgenbaum, MD, MBA, author of CHASING MY CURE, invited me to join their upcoming panel at the Health Datapalooza. Guess what title we chose? We are nothing if not consistent: Chasing cures. We intend to focus on how open source principles can break […]

Filed Under: health data, patient networks, peer-to-peer health care, policy issues Tagged With: flip teaching, Health Datapalooza, Rare Disease, rare diseases

Building the evidence base for peer health advice

March 4, 2019 By Susannah Fox 7 Comments

Stone carving of a hand holding old fashioned scales

Imagine an intervention that produces results like these: One-third of those living with chronic conditions are now more likely to take necessary medications. The risk of admission to a neonatal ICU during first year of life reduced by 63%. People with with poorly-controlled diabetes were able to achieve a 1.1-point reduction in their HbA1c. Each […]

Filed Under: peer-to-peer health care, positive patterns Tagged With: Centering Healthcare Institute, Centering Pregnancy, Chronic Conditions, diabetes, flip teaching, patientslikeme, peer-to-peer healthcare, Society of Behavioral Medicine

Social media as a platform for hope

November 15, 2018 By Susannah Fox 1 Comment

A group of men stand in knee-deep flood waters with two kayaks. One man is in a kayak.

I’ve been thinking about how people react to a crisis. How, if we are lucky, we find ways to lend and borrow expertise to get through it. And how we lend and borrow courage. In the American South, there is something called the Cajun Navy, an ad hoc, informal group of people who use their […]

Filed Under: demographics, peer-to-peer health care Tagged With: demographics, flip teaching, peer-to-peer healthcare, Sara Riggare, social media

Data as an engine of disruption in health care

October 22, 2018 By Susannah Fox 32 Comments

Medical records closes at 5pm on Friday by Regina Holliday

Continuing my practice of “flipping” an event — posting what I hope to get across in advance in order to jump start the conversation — here is a preview for a panel set to take place on Oct. 23. My co-panelists (Iya Khalil, Deborah Kilpatrick, and Don Rucker) and I will talk about data as an engine […]

Filed Under: health data, medical records, policy issues Tagged With: Anil Sethi, Blue Button, Deborah Kilpatrick, Deven McGraw, Don Rucker, EHR, electronic medical record, FasterCures, flip teaching, Harlan Krumholz, Hugo Campos, Iya Khalil, Lisa Bari, Lucia Savage, Milken Institute, Open Notes

Linking & Amplifying User-centered Networks through Connected Health (L.A.U.N.C.H.)

October 18, 2018 By Susannah Fox 4 Comments

Three lines of far away mountain ranges

Continuing my practice of “flipping” an event — posting what I hope to get across in advance in order to jump start the conversation, here is a preview for a panel set to take place at 12pm on Friday, Oct. 19, in Boston. One of the maxims I carry with me into every meeting and […]

Filed Under: key people, positive patterns Tagged With: connected health, Don Berwick, Don Norman, flip teaching, LAUNCH, Lisa Klesges

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popular posts

  • Crazy, crazy, LongCovid, obvious
  • Sunflowers turn to each other for help
  • Hack needed: Tiny pills, trembling hands
  • Case study: One in a million diagnosis

Recent Comments

  • Susannah Fox on Crazy, crazy, LongCovid, obvious: “Maneesh, thank you! I want to highlight one of the great points you make: Someone should be documenting the real-time…” Jan 26, 10:57
  • Susannah Fox on Crazy, crazy, LongCovid, obvious: “Thank you, Carolyn! My hope is that because clinician leaders like NIH Director Francis Collins are praising the patient-led researchers’…” Jan 26, 10:23
  • Susannah Fox on Crazy, crazy, LongCovid, obvious: ““I can tell you the names of all the women who reached out to respond.” That resonates. My own experience…” Jan 25, 13:11

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