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Susannah Fox

I help people navigate health and technology.

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British Medical Journal

Advancing clinical registries to support pandemic treatment and response

July 27, 2020 By Susannah Fox 23 Comments

Close up of fuzzy dandelion seeds

The biomedical research model has a blind spot. People living with a condition or disease are traditionally seen as passive sources of data, not active participants in the research. We as a society miss out on promising avenues of inquiry. It’s time to widen our lens. On August 12, I’ll moderate a discussion about how […]

Filed Under: health data, peer-to-peer health care Tagged With: Body Politic, British Medical Journal, Council of Medical Specialty Societies, COVID19, Emily Sirotich, flip teaching, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, LongCovid, patient registries, Quantified Self, rheumatoid arthritis

The Pew Internet/Health FAQ

November 20, 2009 By Susannah Fox 29 Comments

A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your questions and answers in the comments: What are you curious […]

Filed Under: public Q&A, trends & principles Tagged With: Anonymity, Baloney Detection Kit, British Medical Journal, Carl Sagan, Cdt, Center For Studying Health System Change, Daniel Solove, Diagnostic Aid, Family Caregivers, Google, Health Privacy Project, Jules Polonetsky, Medical Library Association, Pew Internet, Taxonomy

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popular posts

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Recent Comments

  • Susannah Fox on From stunt to solution: “Thanks, Lisa! I love that perspective.” Mar 1, 15:40
  • Lisa Suennen on From stunt to solution: “Hey S- it strikes me that this one has become partially true “What if science & medicine became like the…” Mar 1, 10:33
  • Dave deBronkart on Standing ovation… then crickets: “Ohhh, I had no recollection of that (and I’ve never heard of the Little Prince problem). Here’s a photo of…” Feb 25, 11:39

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Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

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