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Susannah Fox

I help people navigate health and technology.

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Daniel Solove

A taxonomy of health data

February 4, 2019 By Susannah Fox 36 Comments

Red and green M&M candies both mixed and sorted by color

How do you define “health data”? To borrow a phrase from Daniel Solove, it is a concept in disarray and in need of a taxonomy. Here are the items that fall naturally into the health data basket: electronic health record data current or past health and disability status, including mental and physical well-being medication lists […]

Filed Under: health data, internet geology, policy issues Tagged With: Daniel Solove, Health Data, Hipaa

The Pew Internet/Health FAQ

November 20, 2009 By Susannah Fox 29 Comments

A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your questions and answers in the comments: What are you curious […]

Filed Under: public Q&A, trends & principles Tagged With: Anonymity, Baloney Detection Kit, British Medical Journal, Carl Sagan, Cdt, Center For Studying Health System Change, Daniel Solove, Diagnostic Aid, Family Caregivers, Google, Health Privacy Project, Jules Polonetsky, Medical Library Association, Pew Internet, Taxonomy

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popular posts

  • Hack needed: Tiny pills, trembling hands
  • Sunflowers turn to each other for help
  • Hypothesis generator
  • Mystery solved. Again.

Recent Comments

  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “Update: Peer-to-peer connections, open-source design, and new manufacturing capabilities may have yielded a solution. Here’s the story: TikTok Users Rally…” Jan 11, 06:39
  • Susannah Fox on Lessons learned about hospice care: “Erica, thank you for fighting for your grandmother and I’m sorry for your loss. So many themes and vignettes in…” Jan 4, 08:25

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