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Susannah Fox

I help people navigate health and technology.

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internet geology

A taxonomy of health data

February 4, 2019 By Susannah Fox 36 Comments

Red and green M&M candies both mixed and sorted by color

How do you define “health data”? To borrow a phrase from Daniel Solove, it is a concept in disarray and in need of a taxonomy. Here are the items that fall naturally into the health data basket: electronic health record data current or past health and disability status, including mental and physical well-being medication lists […]

Filed Under: health data, internet geology, policy issues Tagged With: Daniel Solove, Health Data, Hipaa

Persistence vs. flow

March 11, 2014 By Susannah Fox 18 Comments

Aerial view of Choptank River with meandering tributaries cutting through greenery

The Pew Research Center has released its latest report celebrating the 25th anniversary of the Web. This one looks forward to 2025, with experts’ predictions. Here’s my favorite quote so far, from the “Pithy Additions” section: Jerry Michalski, founder of REX, the Relationship Economy eXpedition, observed, “The Internet gives us Persistence — the ability to leave things for […]

Filed Under: internet geology, trends & principles Tagged With: #bcsm, AIDS.gov, Bedsider, Flip the Clinic, Jerry Michalski, Lisa Bonchek Adams, patientslikeme, Pew Research Center, SeattleMamaDoc, Smart Patients

Health data’s adolescence

March 5, 2014 By Susannah Fox 8 Comments

I wrote a guest post for the Health Data Consortium — here’s the start of it: This year marks the 25th anniversary of Sir Tim Berners-Lee’s proposal to create what we now call the Web, the visual, hypertext organizing system which overlays the internet. The pace of internet adoption gathered speed once people could more intuitively […]

Filed Under: internet geology, positive patterns Tagged With: Blue Button, Health Datapalooza, Katie McCurdy, Pew Research Center, ProPublica, Quantified Self, RunKeeper, Tracking for Health

The Web at 25

February 27, 2014 By Susannah Fox 16 Comments

My latest assignment at the Pew Research Center had nothing to do with health and health care, but everything to do with my personal history as an internet geologist. Here’s the report: The Web at 25 in the U.S. It was incredibly fun to spelunk in our survey archives, digging up the first national measures […]

Filed Under: internet geology

“I was born too soon” – my grandmother, upon seeing the Web for the first time

July 24, 2012 By Susannah Fox Leave a Comment

Internet penetration in the US was at 14% in 1995

The 19th International AIDS Conference, held this week in Washington, DC, included a session entitled, “The State of New Media and HIV,” hosted by AIDS.gov. My role on the panel was a familiar one – to present the Pew Internet Project’s latest research about mobile, social technologies and their impact on health and health care. […]

Filed Under: internet geology, social media, trends & principles Tagged With: AIDS.gov, family, HIV/AIDS, Pew Internet, Rosalie Yerkes Figge

The impact of the internet on one man’s life

March 13, 2012 By Susannah Fox 9 Comments

Nell Minow is a movie critic and corporate governance watchdog (yep, both). She and I were seated together at a luncheon a few weeks ago, part of a weekend-long meeting on leadership. We had just watched the movie, Act of Valor, and began talking about different kinds of leaders and heroes — those who seek […]

Filed Under: e-patient stories, internet geology Tagged With: Americans With Disabilities Act, bulletin boards, Facial Paralysis, Hearing Loss, Indomitable Spirit, Moebius Syndrome, Navy Seals, Nell Minow, Rare Disease

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