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Susannah Fox

I help people navigate health and technology.

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AIDS.gov

Break my heart, make me change

August 1, 2014 By Susannah Fox 19 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

Take a deep breath and then look at this data about HIV in the U.S.: I have seen these numbers before, but never laid out so clearly and so beautifully. Thank you, Jeff Guo of the Washington Post, for breaking my heart. Thank you, because I think we all need our hearts broken anew from […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: #whatifhc, AIDS.gov, Bedsider, Black Lives Matter, HIV/AIDS, Kicesie Drew, peer-to-peer healthcare, Pew Research Center, Vic Strecher

Persistence vs. flow

March 11, 2014 By Susannah Fox 18 Comments

Aerial view of Choptank River with meandering tributaries cutting through greenery

The Pew Research Center has released its latest report celebrating the 25th anniversary of the Web. This one looks forward to 2025, with experts’ predictions. Here’s my favorite quote so far, from the “Pithy Additions” section: Jerry Michalski, founder of REX, the Relationship Economy eXpedition, observed, “The Internet gives us Persistence — the ability to leave things for […]

Filed Under: internet geology, trends & principles Tagged With: #bcsm, AIDS.gov, Bedsider, Flip the Clinic, Jerry Michalski, Lisa Bonchek Adams, patientslikeme, Pew Research Center, SeattleMamaDoc, Smart Patients

One voice, many inflections: HIV clinical trial communications

May 10, 2013 By Susannah Fox 14 Comments

Demographics of Twitter, Facebook, Pinterest, Instagram, Tumblr

I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]

Filed Under: participatory research, research issues, trends & principles Tagged With: AIDS.gov, Clinical Trials, HIV/AIDS, participatory research

“I was born too soon” – my grandmother, upon seeing the Web for the first time

July 24, 2012 By Susannah Fox Leave a Comment

Internet penetration in the US was at 14% in 1995

The 19th International AIDS Conference, held this week in Washington, DC, included a session entitled, “The State of New Media and HIV,” hosted by AIDS.gov. My role on the panel was a familiar one – to present the Pew Internet Project’s latest research about mobile, social technologies and their impact on health and health care. […]

Filed Under: internet geology, social media, trends & principles Tagged With: AIDS.gov, family, HIV/AIDS, Pew Internet, Rosalie Yerkes Figge

Going Viral Against HIV and STIs

December 10, 2010 By Susannah Fox 5 Comments

The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so smoking hot? And is this unique to conferences (or panels) about sexual […]

Filed Under: positive patterns Tagged With: AIDS.gov, cdc, GMHC, Harm Reduction Coalition, Hiv, HIV CIE, Kicesie Drew, Lee Aase, LoveHeals, Mayo Clinic, New York State, Pew Internet, Qpid.me, sexual health, STIs, susannah fox

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