• Skip to primary navigation
  • Skip to content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Writing
    • greatest hits
    • beauty and wonder
    • demographics
    • featured commenters
    • key people
    • peer-to-peer health care
    • positive patterns
    • public Q&A
    • trends & principles
  • Research
    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Fact sheet: differences between LGBTQ and straight youth in their use of social media, online health resources
  • About me
    • Now
    • Curriculum vitae
  • Upcoming events

participatory research

The Rise of the New Bio-citizen

March 11, 2018 By Susannah Fox 4 Comments

The Rise of the New Bio-citizen

Over the next two days, I’ll be part of a group convened by Eleonore Pauwels and Todd Kuiken to discuss barriers to citizen-driven biomedical research. If you are intrigued, read the report, “The Rise of the New Bio-citizen,” which lays out how people “are pursuing a range of activities from analyses of genomic data for […]

Filed Under: participatory research, peer-to-peer health care, policy issues, research issues Tagged With: Invent Health, patient activation, peer-to-peer healthcare, Rare Disease, Tracking for Health

Access to results that matter

October 26, 2017 By Susannah Fox 16 Comments

Access to results that matter

The Patient-Centered Outcomes Research Institute (PCORI) will kick off their annual meeting on Tuesday, October 31. I will moderate the first panel, “Access to Results That Matter,” and, as I like to do, I’m starting the conversation early online. Here’s the session description: Traditional health research often does not provide the answers to patients’ questions […]

Filed Under: participatory research, policy issues, research issues Tagged With: flip teaching, PCORI, Regina Holliday

“His doctors were stumped. Then he took over.”

February 5, 2017 By Susannah Fox Leave a Comment

“His doctors were stumped. Then he took over.”

How might we empower people to participate in research about their own diseases or conditions? Which models work best for organizations solving medical mysteries or improving care for those living with rare conditions? These are two of the questions raised by a New York Times story today: “His doctors were stumped. Then he took over,” by Katie Thomas […]

Filed Under: hc's problem list, key people, participatory research, patient networks, peer-to-peer health care Tagged With: C3N Project, patientslikeme, peer-to-peer healthcare, Rare Disease, Smart Patients

Quantified Self Public Health

May 12, 2015 By Susannah Fox 11 Comments

Quantified Self Public Health

Quantified Self Public Health is back! 150+ health geeks of many stripes will gather on Thursday, May 14, in San Diego to discuss how access to personal data could benefit individuals and society. It is an invite-only meeting (sorry!) but filled with voracious documentarians like Joyce Lee (read her Storify from last year) and, well, me (read […]

Filed Under: key people, participatory research, research issues Tagged With: Don Norman, home health care hacks, Ian Eslick, maker movement, public service, QSPH, Quantified Self

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

How did we get here? And where are we going?

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

Quantified Self Public Health Symposium

April 6, 2014 By Susannah Fox 13 Comments

Quantified Self Public Health Symposium

On April 3, I was part of  a symposium organized by Bryan Sivak, CTO, U.S. Department of Health and Human Services; Larry Smarr, Director, Calit2; and Gary Wolf, Director, Quantified Self Labs, where I presented the Pew Research Center’s findings on tracking for health. I uploaded my remarks in a separate post — this one is more of a “notes […]

Filed Under: key people, participatory research, pt/doc co-care, pts as teachers, research issues Tagged With: Pew Research Center, public service, QSPH, Quantified Self

  • Page 1
  • Page 2
  • Page 3
  • Page 4
  • Next Page »

Before Footer

popular posts

  • Hypothesis generator
  • Public Q&A: Empowering people in their relationships with clinicians
  • Hack needed: Tiny pills, trembling hands

Recent Comments

  • Susannah Fox on Podcasts: What are you listening to?: “Thanks, Paul! I'll give it a listen.” Feb 21, 11:13
  • Susannah Fox on A taxonomy of health data: “Thanks, Dave! Been offline for some R&R -- always grateful for your insights. Your emphasis on the call for raw…” Feb 21, 11:13
  • Paul Swindell on Podcasts: What are you listening to?: “I can thoroughly recommend Dr Chatterjee, he's now the No.1 health podcast in the UK https://drchatterjee.com/blog/category/podcast/” Feb 21, 10:07

Footer

Follow me on Twitter

My Tweets

Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Explore

Copyright Susannah Fox © 2019 · WordPress · Log in