UPDATE: On August 12, I’ll moderate a discussion about prioritizing patient engagement and inclusion of patient-generated COVID-19 data in clinical registries. It is being offered free and open to the public. Read a preview post and register here for the webinar. Every day I see a new example of a survey or other tool to […]
23andme
A genomic literacy spiral?
Like many people, I’m intrigued by the 23andme drama. Here’s a quote I scribbled down at Health Foo: The data and genomics revolution is akin to the print revolution. Hundreds of years ago, peasants looked at this converted wine press and asked why we need more Bibles when nobody can read. The printing press triggered a […]
The Decision Tree: How Better Health Can Scale
“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health care from the internet. But there is a loophole: to […]
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