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Susannah Fox

I help people navigate health and technology.

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chronic disease

Why entrepreneurs should listen to patients & caregivers

April 9, 2020 By Susannah Fox 1 Comment

Screenshot of Harvard Business Review article about how chronic disease patients are innovating together online

I am thrilled to share this excerpt from the Harvard Business Review article I wrote, “How Chronic-Disease Patients Are Innovating Together Online”: The internet gives us virtually unlimited access to each other. That deceptively simple insight is an untapped opportunity in health care. When companies are searching for their next idea, they should look to […]

Filed Under: peer-to-peer health care, social media Tagged With: Christopher Snider, Chronic Conditions, chronic disease, Dana Lewis, HopeLab Foundation, innovation, Vicky Rideout, Well Being Trust

Who is ready to stand naked in front of the mirror of data?

July 29, 2014 By Susannah Fox Leave a Comment

In this talk at the Quantified Self Public Health symposium, I argue that we must respect the context of people’s lives while designing health interventions, tools, and research projects. Not everyone is ready to stand naked in front of the bright light of numbers on a screen. Let’s be gentle in our approach, especially to […]

Filed Under: health data, trends & principles Tagged With: california healthcare foundation, caregivers, chronic disease, Google Poetics, Health Data, Pew Research Center, QSPH, Quantified Self, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

Secret questions, naked truths

April 6, 2014 By Susannah Fox 4 Comments

Google Poetics: I don't know how to...

My prepared remarks for the Quantified Self Public Health Symposium (here are some notes from the event): You know when you type the first few words of a query and Google suggests the rest based on what thousands of other people have typed next? There’s a Twitter account called Google Poetics that takes those suggested phrases […]

Filed Under: demographics, key people, pt/doc co-care, research issues Tagged With: california healthcare foundation, caregivers, chronic disease, Chronic Diseases, diabetes, Google Poetics, Kim Vlasic, Pew Research Center, QSPH, Quantified Self, tracking, Tracking for Health

The Decision Tree: How Better Health Can Scale

May 1, 2010 By Susannah Fox 19 Comments

“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health care from the internet. But there is a loophole: to […]

Filed Under: health data, patient networks, policy issues, positive patterns Tagged With: 23andme, chronic disease, CureTogether, Decision Tree, digital divide, Genetics, getupandmove, Health Data, Hipaa, patientslikeme, Pew Research Center, susannah fox, Thomas Goetz

Health 2.0 Europe: A Moveable Feast–Susannah Fox

April 19, 2010 By Susannah Fox 27 Comments

Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the participants have left the building. Health 2.0 Europe began, for me, in February, […]

Filed Under: demographics, trends & principles Tagged With: ACOR, california healthcare foundation, cancer, Chronic Conditions, chronic disease, diabetes, health 2.0, Heart Conditions, High Blood Pressure, Internet Users, Lung Conditions, participatory medicine, patientslikeme, pew internet project, Pew Research Center, Sharing Strength, Social Impact Of The Internet

Chronic Disease in Data and Narrative–Susannah Fox

March 24, 2010 By Susannah Fox 74 Comments

For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a heart condition, lung condition, high blood pressure, diabetes, and/or cancer has an […]

Filed Under: patient networks, understanding statistics Tagged With: california healthcare foundation, chronic disease, Pew Internet, Pew Research Center

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popular posts

  • Hack needed: Tiny pills, trembling hands
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Recent Comments

  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “Update: Peer-to-peer connections, open-source design, and new manufacturing capabilities may have yielded a solution. Here’s the story: TikTok Users Rally…” Jan 11, 06:39
  • Susannah Fox on Lessons learned about hospice care: “Erica, thank you for fighting for your grandmother and I’m sorry for your loss. So many themes and vignettes in…” Jan 4, 08:25

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