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Susannah Fox

I help people navigate health and technology.

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participatory medicine

Medicine’s cultural “caution tape”

November 6, 2017 By Susannah Fox Leave a Comment

Yellow caution tape against a black background

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Jack Penner, in response to “His doctors were stumped. Then he took over” (2017): In terms of how can we empower patient to become active participants, one thing that comes to mind is lowering […]

Filed Under: featured commenters, net-friendly docs, patient networks, social media Tagged With: participatory medicine, Patient Community, peer-to-peer healthcare

“They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy–Susannah Fox

December 28, 2010 By Susannah Fox 26 Comments

Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D.,  last September: As you listen to Dr. Coombs’s chilling story about a man who lost his foot because nobody ever took his sock off to examine it, please review Jessie’s […]

Filed Under: shared decision making, Why PM Tagged With: Alice Tolbert Coombs, Jessie Gruman, Journal of Participatory Medicine, Mayo Transform, participatory medicine, patientslikeme, Paul Wicks, Pew Internet

What can surgeons learn from patients?

September 22, 2010 By Susannah Fox 32 Comments

I’m going to be on a panel at the American College of Surgeons 96th Annual Clinical Congress on October 5 in Washington, DC. The session title is pretty provocative: To Tweet or Become Extinct?: Why Surgeons Need to Understand Social Networking and my part of it uses the “e” word that I recently tried to […]

Filed Under: pts as teachers Tagged With: Alice Tolbert Coombs, American College of Surgeons, Catherine deVries, Howard Luks, KevinMD, participatory medicine, Social Networking, surgery

Patient Communities: Which Way Forward?–Susannah Fox

August 9, 2010 By Susannah Fox 21 Comments

If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created by this umbrella group? This isn’t just some health geek SimCity exercise. I was actually asked that question recently, by people who have lined up the […]

Filed Under: patient networks Tagged With: ACOR, cancer, Decision Tree, health 2.0, imedo, iWantGreatCare, paginemediche.it, Paris, participatory medicine, patientslikeme, Pew Internet, The Moment

Health 2.0 Europe: A Moveable Feast–Susannah Fox

April 19, 2010 By Susannah Fox 27 Comments

Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the participants have left the building. Health 2.0 Europe began, for me, in February, […]

Filed Under: demographics, trends & principles Tagged With: ACOR, california healthcare foundation, cancer, Chronic Conditions, chronic disease, diabetes, health 2.0, Heart Conditions, High Blood Pressure, Internet Users, Lung Conditions, participatory medicine, patientslikeme, pew internet project, Pew Research Center, Sharing Strength, Social Impact Of The Internet

Why is participatory medicine such a tough sell?–Susannah Fox

March 22, 2010 By Susannah Fox 28 Comments

Kevin A. Clauson, Pharm.D. is an associate professor at the College of Pharmacy and adjunct associate professor at the College of Medicine – Biomedical Informatics Program at Nova Southeastern University in Fort Lauderdale,  FL.  He teaches a course on Consumer Health Informatics and Web 2.0 in Healthcare and blogs and conducts research about related topics. […]

Filed Under: research issues, trends & principles, Why PM Tagged With: Centers For Disease Control, Consumer Health Informatics, participatory medicine, Pharmacists, social media

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  • Susannah Fox on Crazy, crazy, LongCovid, obvious: ““I can tell you the names of all the women who reached out to respond.” That resonates. My own experience…” Jan 25, 13:11
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