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Susannah Fox

I help people navigate health and technology.

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    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
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    • Fact sheet: differences between LGBTQ and straight youth in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
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demographics

Trust gap: Health apps and data sharing

April 29, 2019 By Susannah Fox 21 Comments

Man on a beach blocks camera with his hand

There has been a steady drip-drip-drip of articles documenting how health apps are sharing data with third parties: Data sharing practices of medicines related apps and the mobile ecosystem: traffic, content, and network analysis, by Grundy et al. (British Medical Journal, Feb. 25, 2019) You Give Apps Sensitive Personal Information. Then They Tell Facebook. Wall […]

Filed Under: demographics, health data, policy issues, trends & principles Tagged With: Fda, Health Data, Health Privacy, Hhs, Hipaa, NHS, Trustworthiness

Half of 18- to 22-year-olds seek peer health advice online

April 22, 2019 By Susannah Fox 4 Comments

Man's hand holding a mobile phone with coffee cup in foreground

A 2018 national survey by Hopelab and Well Being Trust uncovered an astonishing finding: Fully half (51%) of 18- to 22-year-olds say they have tried to find people online with health concerns similar to their own. That is double the percentage of teens (14- to 17-year-olds) who reported doing this activity and it’s much higher […]

Filed Under: demographics, peer-to-peer health care Tagged With: addiction, Breast Cancer Survivor, cancer, diabetes, diet, fitness, HopeLab Foundation, mental health, pregnancy, STIs, Vicky Rideout, Well Being Trust

Public Q&A: How to connect teens with health peers

March 18, 2019 By Susannah Fox 9 Comments

A subway train speeds away from a nearly empty platform

In the spirit of Public Q&A, I am sharing a question I received from someone who helps run outreach and support programs for a disease-focused nonprofit: “In your research did you learn about what mode and types of connecting teens preferred? Did any teens express wishes for something online that they couldn’t find in terms of connecting with peers?” Essentially, […]

Filed Under: demographics, peer-to-peer health care, public Q&A Tagged With: Facebook, HopeLab Foundation, peer-to-peer healthcare, teens, Vicky Rideout, Well Being Trust

Fact sheet: U.S. teens and adults at the intersection of health and technology

February 11, 2019 By Susannah Fox 1 Comment

Group of people in front of huge screen of numbers

In an earlier post I shared the history of the “fact sheets” I maintain about health and technology. I thought I’d share a few highlights from the grandmother of them all — key data points on U.S. teens and adults and their use of technology to pursue health. It is the first one I created when I […]

Filed Under: demographics Tagged With: digital divide, fact sheets, internet access, peer-to-peer healthcare, Pew Internet, social media, teens

Helping people find the needle in a data haystack

January 14, 2019 By Susannah Fox 8 Comments

Needle in haystack by Madhavi Kuram on Flickr

One of the most important customer-service lessons I ever learned was from E-patient Dave: when it comes to disseminating research, give people what they need, not what you want to create. About a decade ago, Dave was on deadline to turn in slides for a presentation. He needed one key survey finding to illustrate a […]

Filed Under: demographics, research issues, social media, trends & principles Tagged With: fact sheets, HopeLab Foundation, Pew Internet, Pew Research Center, social media, survey, teens, Vicky Rideout, Well Being Trust

Well/Connected

January 11, 2019 By Susannah Fox 1 Comment

Peer to peer health advice: your community may really be your superpower

Dr. Joe Kvedar interviewed me for his podcast, Well/Connected, and I thought I’d share footnotes for all the resources I mentioned. Key findings from the national survey of 14- to 22-year-olds focused on digital health and social media use, sponsored by Hopelab and Well Being Trust, which took a special look at people living with […]

Filed Under: demographics, key people, peer-to-peer health care Tagged With: Alexandra Drane, Hhs, HopeLab Foundation, Joe Kvedar, peer-to-peer healthcare, Pew Internet, Pew Research Center, podcasts, Reframe Health, Tom Ferguson, Vicky Rideout, Well Being Trust

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