My friend and community colleague Margie Morris wrote a wonderful article for a clinical neuroscience journal that, with her permission, I am excerpting for a series of posts. My goal is to spark discussion about each of her insights. She writes: To meaningfully connect, we will need to do more than show up online. Now, […]
social media
Why entrepreneurs should listen to patients & caregivers
I am thrilled to share this excerpt from the Harvard Business Review article I wrote, “How Chronic-Disease Patients Are Innovating Together Online”: The internet gives us virtually unlimited access to each other. That deceptively simple insight is an untapped opportunity in health care. When companies are searching for their next idea, they should look to […]
Mystery solved. Again.
Friends, I have yet another so-extraordinary-it’s-ordinary story of peer-to-peer health care to share. Andrew Wilkinson wrote on Twitter: A few months ago, as a last ditch effort, I posted on Twitter about the horrible acid reflux which I’d been suffering from for almost 10 years. I had tried just about everything. Proton pump inhibitors, dietary […]
We need a digital health Cajun Navy
The Cajun Navy – people who rally their personal boats to rescue hurricane survivors – is an example of how ordinary citizens are the true first responders in a disaster zone. Instead of seeing locals as liabilities, the Federal Emergency Management Agency has started looking for ways to support their work. As David Graham wrote in The Atlantic: […]
Helping people find the needle in a data haystack
One of the most important customer-service lessons I ever learned was from E-patient Dave: when it comes to disseminating research, give people what they need, not what you want to create. About a decade ago, Dave was on deadline to turn in slides for a presentation. He needed one key survey finding to illustrate a […]
Get Social Health
Janet Kennedy recently hosted me on the Get Social Health podcast, which focuses on how social media is being used to help hospitals, clinicians, caregivers, and patients connect and engage. We discuss how Twitter hashtags can be like camp fires, where people gather to tell stories, and why I have empathy for people who don’t […]
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