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Susannah Fox

I help people navigate health and technology.

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Wall Street Journal

LongCovid’s citizen scientists

February 1, 2021 By Susannah Fox 9 Comments

Flock of black birds flying together in a blue sky

Amy Dockser Marcus writes with the sensitivity and precision of a scientist, which is why I was thrilled that she recently turned her attention to the patient-led research being conducted by people with LongCovid, which affects an estimated 10-20% of COVID-19 patients. The Wall Street Journal‘s pay wall may prevent you from reading the full […]

Filed Under: participatory research, peer-to-peer health care, research issues, social media Tagged With: Amy Marcus, Emily Sirotich, Eric Topol, Gina Assaf, Helen Burstin, LongCovid, peer-to-peer healthcare, Wall Street Journal

When Patients Band Together: Far From a Disgrace

September 8, 2011 By Susannah Fox 23 Comments

When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a very nice piece in the Wall Street Journal about how […]

Filed Under: patient networks, pt/doc co-care Tagged With: Advocates, Cardiologist, Mainstream Media, Mayo Clinic, patient groups, Patient Network, Peer To Peer, Rare Disease, rare diseases, Roadblocks, Ron Winslow, Scad, Universal Health Care, Using Social Networks, Virtual Registry, Wall Street Journal

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popular posts

  • Hypothesis generator
  • Sunflowers turn to each other for help
  • "I've been there, let's change things" innovation
  • Project management for caregivers

Recent Comments

  • Susannah Fox on From stunt to solution: “Thanks, Lisa! I love that perspective.” Mar 1, 15:40
  • Lisa Suennen on From stunt to solution: “Hey S- it strikes me that this one has become partially true “What if science & medicine became like the…” Mar 1, 10:33
  • Dave deBronkart on Standing ovation… then crickets: “Ohhh, I had no recollection of that (and I’ve never heard of the Little Prince problem). Here’s a photo of…” Feb 25, 11:39

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