Today is Rare Disease Day, when we honor the millions of people who teach us what it’s like to live at the edges of the known world of medicine.
pt/doc co-care
Imagining better outcomes for T1D with #MakeHealth
This post originally appeared on Diabetes Mine. Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a new system of care for people living with Type 1 diabetes (T1D). The best way I can describe the group is that everyone […]
“We just flipped a switch.”
“At one level, we just flipped a switch. It wasn’t a complicated, multi-faceted, variegated intervention. All we did was open up the doctor’s notes… Out of that came a cascade.” – Tom Delbanco talking about OpenNotes and how a seemingly simple change — allowing patients to view clinicians’ notes from their visits — is having […]
False boundaries in health care
Clayton Christensen gave a talk at last week’s SMARTHealthIT board meeting on, as he put it, how people think. I was absorbed by his storytelling, so only wrote down a few concepts: We make assumptions based on false correlations (and we should guard against that tendency). Data and maps are verbs, not nouns, and they never tell the […]
Secret questions, naked truths
My prepared remarks for the Quantified Self Public Health Symposium (here are some notes from the event): You know when you type the first few words of a query and Google suggests the rest based on what thousands of other people have typed next? There’s a Twitter account called Google Poetics that takes those suggested phrases […]
Quantified Self Public Health Symposium
On April 3, I was part of a symposium organized by Bryan Sivak, CTO, U.S. Department of Health and Human Services; Larry Smarr, Director, Calit2; and Gary Wolf, Director, Quantified Self Labs, where I presented the Pew Research Center’s findings on tracking for health. I uploaded my remarks in a separate post — this one is more of a “notes […]
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