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Susannah Fox

I help people navigate health and technology.

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Public Q&A: How to connect teens with health peers

March 18, 2019 By Susannah Fox 9 Comments

A subway train speeds away from a nearly empty platform

In the spirit of Public Q&A, I am sharing a question I received from someone who helps run outreach and support programs for a disease-focused nonprofit: “In your research did you learn about what mode and types of connecting teens preferred? Did any teens express wishes for something online that they couldn’t find in terms of connecting with peers?” Essentially, […]

Filed Under: demographics, peer-to-peer health care, public Q&A Tagged With: Facebook, HopeLab Foundation, peer-to-peer healthcare, teens, Vicky Rideout, Well Being Trust

Public Q&A: Empowering people in their relationships with clinicians

January 21, 2019 By Susannah Fox 32 Comments

Painting shows three people reaching out as they climb a giant Rolodex

In the spirit of public Q&A, I’m sharing an intriguing question I received recently from a community colleague. Check out my answer and then add your ideas and suggestions in the comments below. Do you know of any particularly good or interesting services to empower patients in their relationships with doctors, especially ones which involve […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: #InventHealth, Clinicians, Facebook, Inspire, Invent Health, maker movement, patient activation, patientslikeme, peer-to-peer healthcare, Smart Patients, Streetwyze, Voro

Peer support for when the system fails

January 7, 2019 By Susannah Fox 23 Comments

Painting of three figures wearing hospital gowns, each of whom is on a different mountaintop, reaching for each other

What do you do when you know something is wrong but you can’t find anyone to confirm your suspicions? Or when you finally identify the culprit but find out that other people are being kept in the dark? These days it’s likely that you go online and if you are lucky — or determined — […]

Filed Under: patient networks, peer-to-peer health care, policy issues Tagged With: Facebook, medical devices, peer-to-peer healthcare

What I’m reading, listening to, admiring…

January 10, 2015 By Susannah Fox 8 Comments

Susannah at the library

I hunkered down at the library this week, working on a couple of long-term projects. I kept one eye on Twitter, though, as I always do, and wanted to share what distracted — and inspired — me this week: Radiolab: Worth — what would you pay for another month of life? How about a year? […]

Filed Under: beauty and wonder, maternity, positive patterns, social media Tagged With: Amy Romano, Cluetrain Manifesto, cystic fibrosis, diabetes, diabetesmine, Facebook, Kerri Sparling, may I suggest, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Wendy Sue Swanson

Public Q&A: Alternatives to Facebook and YouTube?

December 4, 2014 By Susannah Fox 5 Comments

Kathleen Bogart, PhD, studies how people communicate across disability. I met her through the work I’ve done with the Moebius Syndrome Foundation (and I wrote about her research in 2012: Facial Paralysis, Not Personality Paralysis). She emailed me with a very intriguing question, so I’m sharing it here for discussion: Moebius Syndrome is a highly […]

Filed Under: public Q&A Tagged With: Facebook, Moebius Syndrome, Viddler, Vimeo, Youtube

Save us, Facebook

November 20, 2014 By Susannah Fox 24 Comments

Erin and Drew

The Reuters story about Facebook taking its “first steps into healthcare” read like an announcement that Las Vegas was getting into entertainment or that New York City was getting into fashion. Extraordinary health communities have grown up between the cracks of Facebook’s platform. It’s just that up until now executives publicly looked the other way. […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: cystic fibrosis, Erin Moore, Facebook, Inspire, mitochondrial disease, patientslikeme, Smart Patients

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