I hunkered down at the library this week, working on a couple of long-term projects. I kept one eye on Twitter, though, as I always do, and wanted to share what distracted — and inspired — me this week: Radiolab: Worth — what would you pay for another month of life? How about a year? […]
Public Q&A: Alternatives to Facebook and YouTube?
Kathleen Bogart, PhD, studies how people communicate across disability. I met her through the work I’ve done with the Moebius Syndrome Foundation (and I wrote about her research in 2012: Facial Paralysis, Not Personality Paralysis). She emailed me with a very intriguing question, so I’m sharing it here for discussion: Moebius Syndrome is a highly […]
Save us, Facebook
The Reuters story about Facebook taking its “first steps into healthcare” read like an announcement that Las Vegas was getting into entertainment or that New York City was getting into fashion. Extraordinary health communities have grown up between the cracks of Facebook’s platform. It’s just that up until now executives publicly looked the other way. […]
Evolution of online patient communities
A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]
Examples, please: peer-to-peer healthcare
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with […]
Pandas, Lobsters, and Health Care
Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of chronic illness, patient readiness, and technology readiness. That makes sense to me, […]
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