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Susannah Fox

I help people navigate health and technology.

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patient activation

Public Q&A: Empowering people in their relationships with clinicians

January 21, 2019 By Susannah Fox 32 Comments

Painting shows three people reaching out as they climb a giant Rolodex

In the spirit of public Q&A, I’m sharing an intriguing question I received recently from a community colleague. Check out my answer and then add your ideas and suggestions in the comments below. Do you know of any particularly good or interesting services to empower patients in their relationships with doctors, especially ones which involve […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: #InventHealth, Clinicians, Facebook, Inspire, Invent Health, maker movement, patient activation, patientslikeme, peer-to-peer healthcare, Smart Patients, Streetwyze, Voro

The Rise of the New Bio-citizen

March 11, 2018 By Susannah Fox 4 Comments

Over the next two days, I’ll be part of a group convened by Eleonore Pauwels and Todd Kuiken to discuss barriers to citizen-driven biomedical research. If you are intrigued, read the report, “The Rise of the New Bio-citizen,” which lays out how people “are pursuing a range of activities from analyses of genomic data for […]

Filed Under: participatory research, peer-to-peer health care, policy issues, research issues Tagged With: Invent Health, patient activation, peer-to-peer healthcare, Rare Disease, Tracking for Health

Mobile, Social Health at the National Library of Medicine–Susannah Fox

July 13, 2010 By Susannah Fox 46 Comments

Update: The NLM released new widgets on July 14, along with a redesigned MedlinePlus site. (Read @eagledawg‘s take on these new tools, as well as her response to this post.) Speaking to the senior staff of the National Library of Medicine last week was like going before the best kind of murder board. Picture it: […]

Filed Under: demographics, trends & principles Tagged With: demographics, Forrester Research, mobile, National Library of Medicine, patient activation, Pew Internet, Pew Research Center

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popular posts

  • Crazy, crazy, LongCovid, obvious
  • Sunflowers turn to each other for help
  • Hack needed: Tiny pills, trembling hands
  • Hypothesis generator

Recent Comments

  • Susannah Fox on Crazy, crazy, LongCovid, obvious: ““I can tell you the names of all the women who reached out to respond.” That resonates. My own experience…” Jan 25, 13:11
  • Dee Sparacio on Crazy, crazy, LongCovid, obvious: “When I was first diagnosed in 2005 there was no online support for OC cancer patients/survivors except for ACOR. That…” Jan 25, 12:05
  • Helen Burstin on Crazy, crazy, LongCovid, obvious: “This is such an important post, Susannah. I’m very convinced that peer-to-peer healthcare is here to stay, but more work…” Jan 25, 11:34

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  • Beauty and Wonder
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