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Susannah Fox

I help people navigate health and technology.

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maternity

Case study: Injection tips

January 6, 2022 By Susannah Fox 6 Comments

Bee harvesting pollen from a yellow flower

Friends are starting fertility treatments and are somewhat nervous about all the required injections. Since there’s nothing quite like “been there” guidance, I harvested some peer health advice for them and thought I’d post it here in case people had more to share. First, I thought about whom I would personally turn to for advice. […]

Filed Under: maternity, peer-to-peer health care Tagged With: case study, injection, pregnancy

What I’m reading, listening to, admiring…

January 10, 2015 By Susannah Fox 8 Comments

Susannah at the library

I hunkered down at the library this week, working on a couple of long-term projects. I kept one eye on Twitter, though, as I always do, and wanted to share what distracted — and inspired — me this week: Radiolab: Worth — what would you pay for another month of life? How about a year? […]

Filed Under: beauty and wonder, maternity, positive patterns, social media Tagged With: Amy Romano, Cluetrain Manifesto, cystic fibrosis, diabetes, diabetesmine, Facebook, Kerri Sparling, may I suggest, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Wendy Sue Swanson

Mother’s Day

May 12, 2013 By Susannah Fox 13 Comments

I filled out a form recently which asked: What motivates you to innovate? Without hesitation I typed in “Motherhood.” I had no idea that having kids would rewire my brain so fundamentally, but it did. A few posts to contemplate on Mother’s Day… Mothering Cal: What I learned from parenting a terminally ill child, by […]

Filed Under: end of life, maternity Tagged With: moms

The Walking Gallery

August 27, 2012 By Susannah Fox 1 Comment

Painting of a woman and two children

If you haven’t seen The Walking Gallery firsthand, consider attending the next powwow, in Kansas City, MO, September 21-23, 2012, at the Partnership for Patients meeting. I can’t wait to Do yourself a favor and read Regina Holliday’s explanation of her latest painting, “Bone Black,” about my friend Catherine Fairchild (right). Until then Also, read […]

Filed Under: beauty and wonder, key people, maternity, others' e-patient stories Tagged With: Catherine Fairchild, Laurie Strongin, Regina Holliday, The Walking Gallery

Mama birds: Catherine Fairchild and Laurie Strongin

March 16, 2012 By Susannah Fox 2 Comments

On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy and reasons to laugh when I think I’d just sit down and […]

Filed Under: e-patient stories, maternity Tagged With: Genetic Disorder, Hope for Henry, Marble Road, Mccune Albright Syndrome, Rare Disease

E-patient Interview: Stirrup Queen

April 16, 2008 By Susannah Fox 7 Comments

Cheryl Miller has written an excellent article, “Blogging Infertility,” in The New Atlantis. She brings up a lot of themes that have been echoing throughout my other reading: a once-silent group newly empowered by the internet; teaming patients with similar profiles; home-care tips (there could be a whole blogroll on injections, btw, starting with AmyT […]

Filed Under: e-patient stories, maternity, others' e-patient stories Tagged With: Cheryl Miller, Community Member, Ectopic, Endo, Health Care Decisions, New Atlantis, Nicu, Patient Community, Patient Interview, Peggy Orenstein, pregnancy, Reconnection, Self Advocate, Stirrup, Treatment Choices, Waiting For Daisy, Waiting Rooms

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  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
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