Anyone who has endured a multiple-day fever — or cared for someone with one — knows how exhausting it can be. Imagine experiencing nine weeks of a mysterious elevated temperature. Then nine MONTHS of what feels like a personal broken thermostat. And clinicians have little to no explanation besides plans for future tests. That’s the […]
case study
Case study: Injection tips
Friends are starting fertility treatments and are somewhat nervous about all the required injections. Since there’s nothing quite like “been there” guidance, I harvested some peer health advice for them and thought I’d post it here in case people had more to share. First, I thought about whom I would personally turn to for advice. […]
Case study: Trevor’s disease
A friend recently shared the following story of his successful navigation of the American health care system to get innovative treatment for his ankle. I was so impressed that I thought I’d post it here as a beacon for anyone else searching for answers about the same challenges he has faced. It’s pretty geeky and […]
Case study: Breast cancer
When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us. That is the case with my friend Meagan. She was recently diagnosed with breast cancer. She […]
Case study: One in a million diagnosis
When we get sick or face a new challenge in our lives, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us. That’s one of my core beliefs, based on the fieldwork and research I’ve […]
Case study: Brain surgery
We have a “last mile” problem in patient communities. In the first post of this series, I asked for general advice about finding your people — the peers who could give you advice about your health condition and answer even your most secret questions. Now I’d like to focus on how someone would approach getting […]
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