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Susannah Fox

I help people navigate health and technology.

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case study

Case study: Breast cancer

December 7, 2020 By Susannah Fox 16 Comments

Sunflower in a field of other sunflowers

When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us.  That is the case with my friend Meagan. She was recently diagnosed with breast cancer. She […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: breast cancer, case study, peer-to-peer healthcare, sunflowers

Case study: One in a million diagnosis

June 29, 2018 By Susannah Fox 19 Comments

Screen shot of peer health advice video

When we get sick or face a new challenge in our lives, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us. That’s one of my core beliefs, based on the fieldwork and research I’ve […]

Filed Under: peer-to-peer health care Tagged With: case study, EURORDIS, Matt Might, National Organization For Rare Disorders, NIH, Rare Disease, rare diseases

Case study: Brain surgery

April 25, 2017 By Susannah Fox 36 Comments

Plastic models of the human brain sit on shelves

We have a “last mile” problem in patient communities. In the first post of this series, I asked for general advice about finding your people — the peers who could give you advice about your health condition and answer even your most secret questions. Now I’d like to focus on how someone would approach getting […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Brain Tumor, case study, peer-to-peer healthcare, surgery

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popular posts

  • Crazy, crazy, LongCovid, obvious
  • Sunflowers turn to each other for help
  • Hack needed: Tiny pills, trembling hands
  • Case study: One in a million diagnosis

Recent Comments

  • Susannah Fox on Crazy, crazy, LongCovid, obvious: “Maneesh, thank you! I want to highlight one of the great points you make: Someone should be documenting the real-time…” Jan 26, 10:57
  • Susannah Fox on Crazy, crazy, LongCovid, obvious: “Thank you, Carolyn! My hope is that because clinician leaders like NIH Director Francis Collins are praising the patient-led researchers’…” Jan 26, 10:23
  • Susannah Fox on Crazy, crazy, LongCovid, obvious: ““I can tell you the names of all the women who reached out to respond.” That resonates. My own experience…” Jan 25, 13:11

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  • Demographics
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