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Susannah Fox

I help people navigate health and technology.

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Brain Tumor

Put your tumor to a better use by making it into a bottle opener

October 2, 2017 By Susannah Fox 4 Comments

Three people standing in front of a door at the White House. One person is holding replicas of a brain tumor.

Image above: Megan Smith, Obama White House Chief Technology Officer; Steven Keating, holding replicas of his brain tumor; and John P. Holdren, Director of the Obama White House Office of Science and Technology Policy; on the day the Precision Medicine Initiative was announced. I’m honoring the contributions of my community colleagues over the years by […]

Filed Under: featured commenters, peer-to-peer health care Tagged With: Brain Tumor, Peer To Peer, peer-to-peer healthcare

Case study: Brain surgery

April 25, 2017 By Susannah Fox 36 Comments

Plastic models of the human brain sit on shelves

We have a “last mile” problem in patient communities. In the first post of this series, I asked for general advice about finding your people — the peers who could give you advice about your health condition and answer even your most secret questions. Now I’d like to focus on how someone would approach getting […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Brain Tumor, case study, peer-to-peer healthcare, surgery

Patient Power: Andrew Schorr–Susannah Fox

October 6, 2008 By Susannah Fox 6 Comments

Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: Andrew Schorr, Better Health, Bladder Cancer, Brain Tumor, Cnn, Common Goal, Generous Support, Health Care Professionals, Health Concerns, Lung Cancer, M D Anderson, Medical Centers, Myomectomy, Patient Comments, Patient Power, Renowned Experts, Team Approach, Trusera, Uterine Fibroids, Young Adults

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popular posts

  • Sunflowers turn to each other for help
  • Hack needed: Tiny pills, trembling hands
  • Hypothesis generator
  • How peer-to-peer health advice can help people take their meds on time (and so much more)

Recent Comments

  • Susannah Fox on From stunt to solution: “Thanks, Lisa! I love that perspective.” Mar 1, 15:40
  • Lisa Suennen on From stunt to solution: “Hey S- it strikes me that this one has become partially true “What if science & medicine became like the…” Mar 1, 10:33
  • Dave deBronkart on Standing ovation… then crickets: “Ohhh, I had no recollection of that (and I’ve never heard of the Little Prince problem). Here’s a photo of…” Feb 25, 11:39

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  • Beauty and Wonder
  • Demographics
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