On February 21, Larry Chu, MD, announced that Stanford Medicine X would take a hiatus. He shared the following story: Eight years ago, I posted a tweet announcing my intention to launch my first conference at Stanford. I received a variety of responses, but the one that remains the most poignant is the one I received from […]
e-patient stories
Conference organizers:
Unrest
The film “Unrest” will debut on Independent Lens this week (check your local listings — in the DC area it will air on Jan. 12 at 10:30pm on WETA). I couldn’t wait and bought my own digital copy on Amazon. Let me just say: It’s no surprise that it’s on the short list for an Academy […]
Regina Holliday brings beauty and wonder to health care
If you’re a regular reader of my blog, you may have noticed that the new design requires a big “featured image” at the top of every post. It’s an interesting creative challenge to illustrate some of the themes I bring out — peer health advice, medical errors, health data… Luckily, Regina Holliday generously posts gorgeous […]
How my food-allergy community “flips the clinic”
May 10-16, 2015, is Food Allergy Awareness Week. I am grateful to the women (and a few men) who help me care for my son with food allergies. I’ve never met most of them in person, but they are there for me, 24×7, answering questions and sharing resources.
What I’ve been working on
It’s been a busy few weeks and I’d love to share a few items in one post: I served as the emcee at the Robert Wood Johnson Foundation‘s Data for Health report release event. I attempted to capture the spirit of the event in this Storify. Here’s a post I wrote about the Data for Health initiative: Imagining […]
Cystic Fibrosis For One Day
I shadowed a mom and her 5-year-old with CF from afar for 24 hours. It taught me more than I could have imagined about living with a life-shortening disease — and about myself. This “empathy exercise” was organized by Smart Patients, an online community where patients and caregivers learn from each other.
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