Cancer patients were among my first peer health innovation teachers and remain, years later, among my favorite communities to follow. I keep an eye out for hashtags like #gyncsm (gynecological cancer social media), #bcsm (breast cancer social media), and #lcsm (lung cancer social media) on Twitter. I listen to podcasts like The Cancer Mavericks (and […]
pts as teachers
Crazy, crazy, LongCovid, obvious
LongCovid is an extraordinary challenge to the human body. It’s been met with an extraordinary response from the human spirit. As I wrote in a previous post, we are watching patients, caregivers, clinicians, researchers, and policymakers move through the stages of peer-to-peer health innovation at a fast clip. Faster than I’ve ever seen in my […]
Imagining better outcomes for T1D with #MakeHealth
This post originally appeared on Diabetes Mine. Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a new system of care for people living with Type 1 diabetes (T1D). The best way I can describe the group is that everyone […]
Food Allergy 101: hold the blah-blah-blah
UPDATE: FARE has created an excellent 15-minute online class: How to Save a Life: Recognizing and Responding to Anaphylaxis Original post: In a fit of housecleaning last spring, I recycled all my old food-allergy training files since they were 5+ years old. I figured it wouldn’t be very hard to find a good one-pager on […]
Quantified Self Public Health Symposium
On April 3, I was part of a symposium organized by Bryan Sivak, CTO, U.S. Department of Health and Human Services; Larry Smarr, Director, Calit2; and Gary Wolf, Director, Quantified Self Labs, where I presented the Pew Research Center’s findings on tracking for health. I uploaded my remarks in a separate post — this one is more of a “notes […]
Learning about PhotoVoice
At yesterday’s A Healthy America event, I met Yanique Redwood, President & CEO of the Consumer Health Foundation. In researching more about her work, I found that she uses a qualitative research method called PhotoVoice, described as “participatory photography for social change.” Check out some of the projects enabled by PhotoVoice: The Dirty Truth Campaign in Atlanta, […]
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