Longtime followers of this blog know I believe in the power of peers, particularly among people living with rare conditions, and may also know that I am a food-allergy mom. This past weekend I had the chance to attend the annual conference for my rare community, FAREcon, and drink from the peer advice well. Warning: This […]
food allergy
Back to school with food allergies
Food-allergy parents all over the U.S. are engaging in our particular back-to-school rituals: gathering signatures on forms, packaging up emergency medications (one for the nurse, one for the classroom, one for the backpack…), and stocking up on lunchbox essentials. But what about the teachers? How are they preparing? I’d never considered it until my niece […]
Managing the risk of food allergy
When our son was diagnosed with food allergies, we were absorbed into a new way of life, learning the folkways of keeping him safe. We labeled every jar and can in our pantry and fridge so that anyone who visited could see at a glance what was safe (green) or unsafe (red). Like Curtis Sittenfeld, who wrote […]
How my food-allergy community “flips the clinic”
May 10-16, 2015, is Food Allergy Awareness Week. I am grateful to the women (and a few men) who help me care for my son with food allergies. I’ve never met most of them in person, but they are there for me, 24×7, answering questions and sharing resources.
Thank you, Sean Parker
I have a new essay up on Medium: Thank you, Sean Parker. I tell why I’m so grateful to him for his gift to food-allergy research and l share a little bit about why I don’t read comments on food-allergy stories. Also: please check out more cartoons by Tiffany Glass Ferreira — she is awesome:
The Teal Pumpkin Project
I live (mostly) by Michael Pollan’s advice to “eat all the junk food you want as long as you cook it yourself.” But Halloween is an exception. We live in a Sesame Street-like townhouse neighborhood in Washington, DC, so my kids can easily hit 100 houses while trick-or-treating. The candy haul is epic. My food-allergic son has always […]
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