Damon Davis has a new podcast, Discovery Diaries, and I was honored be among his first guests. We got into a wide range of topics: the origins of my interest in patient-led innovation; artificial intelligence and how patients, survivors, and caregivers should be included in the design of AI tools; our time working together at […]
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Public Q&A: Rare Disease and Rebel Health
The Global Genes RARE Advocacy Summit in September 2023 provided a forum for me to talk, for the first time, about my upcoming book and how rare disease communities have been a key part of my professional life. Here’s a set of questions that Sravanthi Meka of Global Genes asked me in advance of the meeting: […]
Inventing the future
If you want to meet the future faster, go out to the edges of your field of vision. Find out what pioneers and rebels are doing and learn from them. Sometimes that means taking a virtual helicopter ride up to the zenith of tech development, as I did recently, watching Dario Gil, SVP and Director […]
Building an intake valve for new ideas
Imagine this: You and your colleagues know there are problems to be solved. You have resources to offer, such as funding, access to experts, and publicity. You are pretty sure there are people with great ideas out there, asking questions, defining the scope of the problems you care about, seeing things that you can’t see. […]
Public Q&A: Acronyms, protocol, and other lessons learned from switching fields
If you have switched career tracks, what lessons did you learn? What advice would you have for someone entering a new company, organization, or even a new culture? Here’s an excerpt from my 2016 interview with The Public Manager about working for the U.S. government: Most of your career was outside of the federal government. What have […]
Celebrating invention and innovation
We are going to need all the ingenuity and help we can get to untangle and improve health and health care. Everyone should have access to the data, information, and tools they need to solve problems. That includes access to each other – peer to peer. My hope is for people to look at a […]
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