Humans have a tendency to overestimate our abilities and those of people we trust. It’s been called the Lake Wobegon effect, after a mythical place where “where all the women are strong, all the men are good looking, and all the children are above average.” It’s a punchline with a dark edge. Consider the following: According to […]
Please join me in honoring and learning from caregivers, first by watching Sarah Kucharski’s powerful, personal story: Second, watch my talk about the bigger picture and how people can help: http://www.viddler.com/v/14c53db8 Now: what’s your story? What roles do you see for caregivers in health care or in your own life? Please share your thoughts in […]
The following articles stopped me in my tracks this week, not least because they relate to my last report, “Family Caregivers are Wired for Health.” Please share what you’re reading — or your thoughts about these articles — in the comments. 1. Dementiaville: How an experimental new town is taking the elderly back to their happier […]
Here are three articles spinning around in my head today: A Letter to Patients With Chronic Disease – written by Rob Lamberts, MD, in 2010, tweeted this morning by Ronan Kavanagh, MD. Key quote: “So when you approach a doctor – especially one you’ve never met before – you come with a knowledge of your disease […]
Erin Moore, the mom-warrior who created that video, also wrote this essay: Are patients a distraction? I think not… Watch, read, cry, be inspired. I sure am.
When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with rare conditions. I learned to scan my spreadsheet of rare-disease respondents for women’s names since they seemed to stop at nothing to protect their […]