I help people navigate health and technology.
If you haven’t seen The Walking Gallery firsthand, consider attending the next powwow, in Kansas City, MO, September 21-23, 2012, at the Partnership for Patients meeting.
I can’t wait to Do yourself a favor and read Regina Holliday’s explanation of her latest painting, “Bone Black,” about my friend Catherine Fairchild (right).
Until then Also, read (or even better: listen to) a conversation with Catherine and another rare-disease mom, Laurie Strongin: Mama Birds.
on Acceptable uses of health data: “Since this blog is my outboard memory, here’s an insight shared by Nick Jacobson on Twitter: “Interesting, maybe it’s about…” Nov 29, 12:59
on How connection can lead to change: “Susannah (and all) – what is your opinion of a ‘platform’ for patients to be able to safely and securely…” Nov 25, 11:04 on How connection can lead to change: “Dave, Susannah, Thanks for your comments. Yes, I do hear you about the ‘elephant’ to tackle of who MIGHT want…” Nov 25, 10:55
Makes us smile to see all of this support! We need that to get individuals to help fund Regina’s new project: Granting 10 patients scholarships to attend the Partnership With Patients Summit. https://www.healthtechhatch.com/project/travel-grants-patients