Genetic Disorder

Mama birds: Catherine Fairchild and Laurie Strongin

March 16, 2012 By Susannah Fox 2 Comments

On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy and reasons to laugh when I think I’d just sit down and […]

Kevin Lawrence on Caregiver starter pack: “We recently read The End-of-Life Handbook in our book club on Smart Patients. It’s aimed at caregivers rather than patients…” Feb 2, 09:41
Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58