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Susannah Fox

I help people navigate health and technology.

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Mccune Albright Syndrome

Mama birds: Catherine Fairchild and Laurie Strongin

March 16, 2012 By Susannah Fox 2 Comments

On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy and reasons to laugh when I think I’d just sit down and […]

Filed Under: e-patient stories, maternity Tagged With: Genetic Disorder, Hope for Henry, Marble Road, Mccune Albright Syndrome, Rare Disease

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Recent Comments

  • Mighty Casey on Networkers pool resources: “Finding “that one person” who becomes your gateway drug to peer community resources – for me, that was Alicia Staley,…” May 25, 10:38
  • Susannah Fox on Networkers pool resources: “Thanks, Kathy! Yes, I have learned so much from Colleen and the Mayo communities. And yes, I like the idea…” May 24, 10:16
  • kathy kastner on Networkers pool resources: “My heart soared when my (sadly retired now) Family doc said, “if you have any good patient-to-patient resources, I’ll put…” May 23, 22:15

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